Development and validation of the Scleroderma Clinical Trials Consortium Damage Index (SCTC-DI): a novel instrument to quantify organ damage in systemic sclerosis

Nava Ferdowsi, Molla Huq, Wendy Stevens, Marie Hudson, Mianbo Wang, Tien Tay, Jodie L Burchell, Sam Mancuso, Candice Rabusa, Vijaya Sundararajan, David Prior, Susanna M Proudman, Murray Baron, Mandana Nikpour, The Scleroderma Clinical Trials Consortium Damage Index Working Group, TheAustralian Scleroderma Interest Group, Canadian Scleroderma Research Group, Mandana Nikpour, Nava Ferdowsi MurrayBaron, Tracy Frech, Marie Hudson, Susanna Proudman, Tien Tay WendyStevens, Lorinda Chung, Jessica K Gordon, Anna Haemel, Sindhu RJohnson, Dinesh Khanna, Thomas A Medsger, John Pauling, Janet E Pope, Lesley Saketkoo TatianaRodriguez-Reyna, James R Seibold, Ankoor Shah, Virginia Steen, Gemma Strickland, Catherine Hill, Mandana Nikpour Gene-SiewNgian, Susanna Proudman, Maureen Rischmueller, Janet Roddy, Wendy Stevens JoanneSahhar, Gemma Strickland, Jenny Walker, Peter Youssef, J. Pope, M. Baron, D. Robinson, N. Jones, N. Khalidi, P. Docherty, E. Kaminska, E. Sutton, J-P. Mathieu, M. Hudson, S. Ligier, T. Grodzicky, C. Thorne, G. Gyger, D. Smith, P.R. Fortin, M. Larché, M. Abu-Hakima, TS Rodriguez-Reyna, AR Cabral, M. Fritzler, Peter Merkel

10.1136/annrheumdis-2018-214764

March 30, 2019

Progressive skin fibrosis is associated with a decline in lung function and worse survival in patients with diffuse cutaneous systemic sclerosis in the European Scleroderma Trials and Research (EUSTAR) cohort

Wanlong Wu, Suzana Jordan, Nicole Graf, Janethe de Oliveira Pena, John Curram, Yannick Allanore, Marco Matucci-Cerinic, Janet E Pope, Christopher P Denton, Dinesh Khanna, Oliver Distler, EUSTAR Collaborators, Marco Matucci-Cerinic, Serena Guiducci, Ulrich Walker, Veronika Jaeger, Bettina Bannert, Giovanni Lapadula, Radim Becvarare, Maurizio Cutolo, Gabriele Valentini, Elise Siegert, Simona Rednic, Yannick Allanore, C. Montecucco, Patricia E. Carreira, Srdan Novak, László Czirják, Cecilia Varju, Carlo Chizzolini, Daniela Allai, Eugene J. Kucharz, Franco Cozzi, Blaz Rozman, Carmel Mallia, Armando Gabrielli, Dominique Farge Bancel, Paolo Airò, Roger Hesselstrand, Duska Martinovic, Alexandra Balbir-Gurman, Yolanda Braun-Moscovici, Nicolas Hunzelmann, Raffaele Pellerito, Ospedale Mauriziano, Paola Caramaschi, Carol Black, Nemanja Damjanov, Jörg Henes, Vera Ortiz Santamaria, Stefan Heitmann, Matthias Seidel, José Antonio Pereira Da Silva, Bojana Stamenkovic, Carlo Francesco Selmi, Mohammed Tikly, Lev N. Denisov, Ulf Müller-Ladner, Merete Engelhart, Eric Hachulla, Valeria Riccieri, Ruxandra Maria Ionescu, Carina Mihai, Cord Sunderkötter, Annegret Kuhn, Georg Schett, Jörg Distler, Pierluigi Meroni, Francesca Ingegnoli, Luc Mouthon, Filip De Keyser, Vanessa Smith, Francesco Paolo Cantatore, Ada Corrado, Susanne Ullman, Line Iversen, Maria Rosa Pozzi, Kilian Eyerich, Rüdiger Hein, Elisabeth Knott, Piotr Wiland, Magdalena Szmyrka-Kaczmarek, Renata Sokolik, Ewa Morgiel, Marta Madej, Juan Jose Alegre-Sancho, Brigitte Krummel-Lorenz, Petra Saar, Martin Aringer, Claudia Günther, Erler Anne, Rene Westhovens, Ellen De Langhe, Jan Lenaerts, Branimir Anic, Marko Baresic, Miroslav Mayer, Maria Üprus, Kati Otsa, Sebastião Cezar Radominski, Carolina de Souza Müller, Valderílio Feijó Azevedo, Sergei Popa, Simon Stebbings, John Highton, Alessandro Mathieu, Alessandra Vacca, Lisa Stamp, Peter Chapman, John O'Donnell, Kamal Solanki, Alan Doube, Douglas Veale, Marie O'Rourke, Esthela Loyo, Mengtao Li, Edoardo Rosato, Antonio Amoroso, Antonietta Gigante, Fahrettin Oksel, Figen Yargucu, Cristina-Mihaela Tanaseanu, Monica Popescu, Alina Dumitrascu, Isabela Tiglea, Rosario Foti, Elisa Visalli, Alessia Benenati, Giorgio Amato, Codrina Ancuta, Rodica Chirieac, Peter Villiger, Sabine Adler, Diana Dan, Paloma García de la Peña Lefebvre, Silvia Rodriguez Rubio, Marta Valero Exposito, Jean Sibilia, Emmanuel Chatelus, Jacques Eric Gottenberg, Hélène Chifflot, Ira Litinsky, Algirdas Venalis, Lesley Ann Saketkoo, Joseph A. Lasky, Eduardo Kerzberg, Fabiana Montoya, Vanesa Cosentino, Massimiliano Limonta, Antonio Luca Brucato, Elide Lupi, François Spertini, Camillo Ribi, Guillaume Buss, Thierry Martin, Aurélien Guffroy, Vincent Poindron, Lori Chung, Tim Schmeiser, Pawel Zebryk, Nuno Riso, Gabriela Riemekasten, Elena Rezus, Piercarlo Sarzi Puttini

10.1136/annrheumdis-2018-213455

March 9, 2019

Systemic sclerosis

Development and validation of the Scleroderma Clinical Trials Consortium Damage Index (SCTC-DI): a novel instrument to quantify organ damage in systemic sclerosis

Progressive skin fibrosis is associated with a decline in lung function and worse survival in patients with diffuse cutaneous systemic sclerosis in the European Scleroderma Trials and Research (EUSTAR) cohort