Management and treatment of children, young people and adults with systemic lupus erythematosus: British Society for Rheumatology guideline scope

MY Md Yusof, EMD Smith, S Ainsworth… - … Advances in Practice, 2023 - academic.oup.com
The objective of this guideline is to provide up-to-date, evidence-based recommendations
for the management of SLE that builds upon the existing treatment guideline for adults living …

[PDF][PDF] Patient and public involvement in a study of multimedia clinical trial information for children, young people and families

R Sheridan, J Preston, S Stones, S Ainsworth… - Research for …, 2020 - eprints.whiterose.ac.uk
There is increasing recognition of the need to involve the public in health research, but
accounts of how best to achieve this are scarce. This article describes public involvement in …

[HTML][HTML] Perceptions and acceptability of microsampling in children and young people: a single-centre survey

AJ Chetwynd, J Marro, L Whitty, S Ainsworth… - BMJ Paediatrics …, 2022 - ncbi.nlm.nih.gov
Background The use of at home microsampling devices, such as dried aliquots of blood and
urine, for scientific research has expanded in recent years. These devices collect small …

[HTML][HTML] Establishing an international awareness day for paediatric rheumatic diseases: reflections from the inaugural World Young Rheumatic Diseases (WORD) Day …

EMD Smith, S Ainsworth, MW Beresford, V Buys… - Pediatric …, 2020 - Springer
There is a lack of awareness of paediatric rheumatic diseases (PRDs), among the public,
and certain groups of healthcare professionals (HCPs), including general practitioners. To …

OP0259-PARE WORLD YOUNG RHEUMATIC DISEASES (WORD) DAY: THE FIRST INTERNATIONAL AWARENESS DAY FOR PAEDIATRIC RHEUMATIC …

S Stones, E Smith, S Ainsworth, V Buys, W Costello… - 2020 - ard.bmj.com
Background: There is a lack of awareness of paediatric rheumatic diseases (PRDs), among
the public, and certain groups of healthcare professionals, such as general practitioners [1] …

OP0172 PARE WORKING TOGETHER FOR CHILDREN AND FAMILIES LIVING WITH RHEUMATIC AND MUSCULOSKELETAL DISEASES: THE EUROPEAN …

S Stones, M Kepic, S Angevare, S Ainsworth… - 2019 - ard.bmj.com
Background The European Network for Children with Arthritis (ENCA) is a pan-European
network led for and by parents and young people with rheumatic and musculoskeletal …

RAiISE: advocating for young people with invisible illnesses

S Ainsworth, JS Ainsworth… - Embedding …, 2020 - bristoluniversitypressdigital.com
In this chapter, we discuss RAiISE (Raising Awareness of invisible Illnesses in Schools and
Education), a charity founded in the United Kingdom that is led by young people, for young …

[PDF][PDF] Identifying the self-and shared-management needs of children with juvenile idiopathic arthritis, THEIR families and professionals: a realist approach

SR Stones, S Ainsworth, S Ainsworth, R Challinor… - researchgate.net
ismart Page 1 Identifying the self- and sharedmanagement needs of children with juvenile
idiopathic arthritis, THEIR families and professionals: a realist approach Simon R. Stones1,2 …