Attitudes and habits of highly humanistic physicians

CM Chou, K Kellom, JA Shea - Academic medicine, 2014 - journals.lww.com
Purpose Humanism is fundamental to excellent patient care and is therefore an essential
concept for physicians to teach to learners. However, the factors that help attending …

Comparing genetic counselor's and patient's perceptions of needs in prenatal chromosomal microarray testing

SA Walser, KS Kellom, SC Palmer… - Prenatal …, 2015 - Wiley Online Library
Objective Chromosome microarray analysis is poised to take a significant place in the
prenatal setting given its increased yield over standard karyotyping, but concerns regarding …

Validation of the ANCA-associated vasculitis patient-reported outcomes (AAV-PRO) questionnaire

JC Robson, J Dawson, H Doll, PF Cronholm… - Annals of the …, 2018 - ard.bmj.com
Objectives To finalise and validate a disease-specific patient-reported outcome (PRO)
measure: the ANCA-associated vasculitis patient-reported outcome (AAV-PRO) …

[HTML][HTML] Patient perceptions of glucocorticoids in anti-neutrophil cytoplasmic antibody-associated vasculitis

JC Robson, J Dawson, PF Cronholm… - Rheumatology …, 2018 - Springer
Granulomatosis with polyangiitis (GPA), microscopic polyangiitis (MPA), and eosinophilic
granulomatosis with polyangiitis (EGPA) are multisystem diseases of small blood vessels …

Couple's narratives of communion and isolation following abnormal prenatal microarray testing results

A Werner-Lin, FK Barg, KS Kellom… - Qualitative health …, 2016 - journals.sagepub.com
In 2% to 3% of cases, prenatal microarray testing detects deletions and duplications in a
fetus' genome that are undetected by conventional cytogenetics. Many of these changes are …

Caregivers and left ventricular assist devices as a destination, not a journey

JN Kirkpatrick, K Kellom, SC Hull, R Henderson… - Journal of cardiac …, 2015 - Elsevier
Background The quality of life (QOL) of caregivers of patients with LVAD-DT (Left Ventricular
Assist Device as Destination Therapy) has not been well explored. Methods We used a …

An exploration of genetic counselors' needs and experiences with prenatal chromosomal microarray testing

BA Bernhardt, K Kellom, A Barbarese… - Journal of genetic …, 2014 - Springer
Because of the higher yield over traditional chromosomal analysis, chromosomal microarray
analysis (CMA) is being used increasingly in prenatal diagnosis. Unfortunately, the clinical …

Exploration, development, and validation of patient-reported outcomes in antineutrophil cytoplasmic antibody–associated vasculitis using the OMERACT process

JC Robson, N Milman, G Tomasson, J Dawson… - The Journal of …, 2015 - jrheum.org
Objective. Antineutrophil cytoplasmic antibody (ANCA)-associated vasculitis (AAV) is a
group of linked multisystem life-and organ-threatening diseases. The Outcome Measures in …

[HTML][HTML] A mixed methods evaluation of early childhood abuse prevention within evidence-based home visiting programs

M Matone, K Kellom, H Griffis, W Quarshie… - Maternal and child …, 2018 - Springer
Objectives In this large scale, mixed methods evaluation, we determined the impact and
context of early childhood home visiting on rates of child abuse-related injury. Methods …

[HTML][HTML] Exploring how patients understand and assess their diabetes control

A Gopalan, K Kellom, K McDonough… - BMC Endocrine …, 2018 - Springer
Background Poor understanding of diabetes management targets is associated with worse
disease outcomes. Patients may use different information than providers to assess their …