The assessment of children with juvenile idiopathic arthritis is a challenge for the clinician, in particular with regard to the ability to elicit patients' subjective values. The development of a new tool that provides an efficient and thorough overview of a patient's status could provide an important step forward.
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References
Filocamo, G. et al. A new approach to clinical care of juvenile idiopathic arthritis: the juvenile arthritis multidimensional assessment report. J. Rheumatol. 38, 938–953 (2011).
World Health Organization. Towards a common language for functioning, disability and health: the International Classification of Functioning, Disability and Health. ICF beginner's guide [online], (WHO, Geneva, 2002).
Feldman, B. M., Grundland, B., McCullough, L. & Wright, V. Distinction of quality of life, health related quality of life, and health status in children referred for rheumatologic care. J. Rheumatol. 27, 226–233 (2000).
Janse, A. J., Sinnema, G., Uiterwaal, C. S., Kimpen, J. L. & Gemke, R. J. Quality of life in chronic illness: children, parents and paediatricians have different, but stable perceptions. Acta Paediatr. 97, 1118–1124 (2008).
Sackett D. L., Rosenberg, W. M., Gray, J. A., Haynes, R. B. & Richardson, W. S. Evidence based medicine: what it is and what it isn't. BMJ 312, 71–72 (1996).
Wilson, S. R. et al. Shared treatment decision making improves adherence and outcomes in poorly controlled asthma. Am. J. Respir. Crit. Care Med. 181, 566–577 (2010).
Parchman, M. L., Zeber, J. E. & Palmer, R. F. Participatory decision making, patient activation, medication adherence, and intermediate clinical outcomes in type 2 diabetes: a STARNet study. Ann. Fam. Med. 8, 410–417 (2010).
[No authors listed] The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc. Sci. Med. 41, 1403–1409 (1995).
Gill, T. M. & Feinstein, A. R. A critical appraisal of the quality of quality-of-life measurements. JAMA 272, 619–626 (1994).
El Miedany, Y., El Gaafary, M., Youssef, S. S. & Palmer, D. Incorporating patient reported outcome measures in clinical practice: development and validation of a questionnaire for inflammatory arthritis. Clin. Exp. Rheumatol. 28, 734–744 (2010).
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Luca, N., Feldman, B. Improving the assessment of children with JIA. Nat Rev Rheumatol 7, 442–444 (2011). https://doi.org/10.1038/nrrheum.2011.99
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DOI: https://doi.org/10.1038/nrrheum.2011.99
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