Weighting of the health dimensions according to their perceived impact by the patients participating in the cross-sectional cohort study (n=472)
| Dimension | Weight mean (SD) | Rank mean (SD) | Top ranked | Upper 25% | Bottom 25% | Lowest ranked |
| Raynaud | 20.9 (18.9) | 7.8 (2.6) | 39.0 | 65.9 | 28.0 | 16.7 |
| Fatigue | 12.9 (10.6) | 7.6 (2.0) | 23.7 | 58.5 | 25.6 | 18.2 |
| Hand function | 12.1 (10.4) | 7.3 (2.3) | 19.5 | 55.9 | 36.2 | 21.2 |
| Pain | 10.4 (8.7) | 7.0 (2.3) | 16.7 | 46.0 | 42.2 | 23.5 |
| Upper.GI symptoms | 8.0 (8.2) | 6.4 (2.4) | 12.3 | 37.3 | 50.6 | 36.0 |
| Life choices | 7.9 (8.2) | 6.6 (2.3) | 12.1 | 35.8 | 52.1 | 37.9 |
| Lower GI symptoms | 7.6 (9.1) | 6.2 (2.5) | 11.4 | 36 | 56.1 | 42.8 |
| Body mobility | 7.0 (6.7) | 6.4 (2.3) | 8.1 | 38.6 | 54.0 | 39.2 |
| Dyspnoea | 6.8 (8.8) | 6.1 (2.4) | 9.3 | 33.7 | 64.4 | 46.2 |
| Digital ulcers | 5.9 (9.8) | 5.6 (3.0) | 17.2 | 32.2 | 68.6 | 61.4 |
Column ‘weight’ gives the mean (SD) of the weight given to each dimension, column “Rank” gives the mean (SD) ranking of each dimension according to the patient distributed weights. The remaining four columns give the percentage of times the dimension was ranked as most important (top ranked), the percentage of times it was ranked as least important (lowest ranked), as well as in the upper and lower quartiles of importance.
GI, gastrointestinal.;