Table 1

List of initiatives collecting disease-specific data on COVID-19

InitiativeMedical area of interest
GRARheumatic and musculoskeletal diseases
EULAR COVID-19Rheumatic and musculoskeletal diseases
SECURE-IBDInflammatory bowel disease
SECURE-SCDSickle cell disease
COVID-HEPHepatology (liver disease or transplantation)
SECURE-LIVERLiver disease
PsoProtectPsoriasis
T1D ExchangeType 1 diabetes
SECURE-ADAtopic dermatitis
COVID-19 Dermatology RegistryDermatology
CURE HIV-COVIDHIV
ASH RC COVID-19Haematology
COVID-19 and Cancer ConsortiumCancer
PRIORITYPregnancy outcomes
Global Hidradenitis Suppurative COVID-19 RegistryHidradenitis suppurativa
  • ASH RC COVID-19, American Society of Hematology Research Collaborative COVID-19 Registry for Hematology; COVID-HEP, COVID-19 in Patients with Liver Disease or Transplantation; CURE HIV, Coronavirus Under Research Exclusion HIV; EULAR, European Alliance of Associations for Rheumatology; GRA, Global Rheumatology Alliance; PRIORITY, Pregnancy Coronavirus Outcomes Registry; PsoProtect, Psoriasis Registry for Outcomes, Therapy and Epidemiology of COVID-19 Infection; SECURE-AD, Surveillance Epidemiology of Coronavirus Under Research Exclusion-Atopic Dermatitis; SECURE-IBD, Surveillance Epidemiology of Coronavirus Under Research Exclusion-Inflammatory Bowel Disease; SECURE-LIVER, Surveillance Epidemiology of Coronavirus Under Research Exclusion-Liver Disease; SECURE-SCD, Surveillance Epidemiology of Coronavirus Under Research Exclusion-Sickle Cell Disease; T1D Exchange, Type 1 Diabetes Exchange.