Table 1

Self-reported survey respondents’ characteristics

N (%)
Demographic characteristics
Age
 18–3045 (12.2%)
 31–4087 (23.6%)
 41–5099 (26.9%)
 51–6090 (24.5%)
 60–7033 (9%)
 >7014 (3.8%)
Gender
 Female347 (94%)
 Male22 (6%)
Organ manifestations
 Arthritis225 (61%)
 Skin120 (32.5%)
 Lupusnephritis127 (34.4%)
 Pulmonary involvement51 (13.8%)
 Heart54 (14.6%)
 Serositis55 (14.9%)
 NPSLE57 (15.4%)
 Haematological94 (25.5 %)
 Other*
Concomitant medications
 Prednisone197 (53.4%)
 MTX40 (10.8%)
 AZA74 (20%)
 MMF47 (12.7%)
 Cyclosporine6 (1.6%)
 Tacrolimus6 (1.6%)
 Belimumab40 (10.8%)
 Cyclophosphamide2 (0.5%)
  • *Other organ manifestations: antiphospholipid antibody syndrome (APS), n=8 (2.1%); myalgia, n=7 (1.9%); fatigue, n=3 (0.8%)

  • AZA, azathioprine; MMF, mycophenolate mofetil; MTX, methotrexate; NPSLE, neuropsychiatric lupus erythematosus.