Table 1

Milestones of patient involvement in scientific rheumatology projects

1993Establishment of the Cochrane Musculoskeletal Consumer Group
2002First patients invited for the biannual OMERACT meeting
2005First use of the term Patient Research Partner4
2010Publication of the EULAR recommendations for patient–researcher collaboration14
2011Establishment of the EULAR network of PRPs–first training meeting
2013First PRPs attending the annual GRAPPA meeting30
2014Publication of the OMERACT recommendations for patient–researcher collaboration28
2015PCORI awards the Arthritis Patient Partnership (AR-PoWER) Network
2016First meeting of the ACR Study Group for PRPs
2017Inaugural presentation from the ANZMUSC consumer advisors
First meeting of the EULAR Study Group for Collaborative Research
2018First meeting of the Action Council, the global initiative to track patient engagement in rheumatology research
  • ACR, American College of Rheumatology; ANZMUSC, Australian and New Zealand Musculoskeletal Clinical Trials network; AR-PoWER, Arthritis Partnership with Comparative Effectiveness Researchers; EULAR, European League Against Rheumatism; GRAPPA, Group for Research and Assessment of Psoriasis and Psoriatic Arthritis; OMERACT, Outcome Measures in Rheumatology; PCORI, Patient-Centred Outcome Research Institute; PRP, Patient Research Partner.