TableĀ 1

Candidate psoriatic arthritis domains and definitions

1AnxietyBeing concerned, worried, fearful or anxious
2Cognitive functionBeing able to concentrate and remember things (concentration and memory issues)
3CopingBeing able to deal with the social and emotional impact of the disease on oneself (includes managing stress, embarrassment)
4Daily activities including houseworkBeing able to fulfil housework tasks, shopping, other necessary daily activities
5DactylitisSausage finger or toe, full thickness inflammation of a digit or toe
6Depressive moodFeeling sad, feeling down or sorry for oneself or feeling depressed
7DiscomfortExperiencing noticeable physical issues/discomfort, which are not pleasant but not causing pain
8Disease activityPresence of disease symptoms
9EmbarrassmentExperiencing awkward self-consciousness or embarrassment in public or social situations
10Emotional supportAvailability of emotional support from family members and friends
11Emotional well-beingFeeling good about oneself
12Employment/workBeing able to perform activities related to work/employment
13EnthesitisPain and inflammation at the site of a tendon bone interface (tendon insertions on bone)
14Family rolesRelationships with family and close friendships (includes parenthood, marriage)
15FatigueExperiencing fatigue, tiredness, lack of energy, feeling worn out or exhausted
16Financial impactExperiencing financial loss due to treatment cost, work loss, early retirement, cost of assistive devices, etc
17FrustrationBeing annoyed or upset about not being able to achieve what one wishes
18Global healthThe overall health status of the patient
19IndependenceBeing able to maintain one's independence, not being dependent on others for help
20Intimacy and sexual relationsSatisfaction with intimate relationships
21Leisure activitiesBeing able to engage in leisure activities
22Medication side effectsExperiencing undesired secondary effects from taking psoriatic arthritis medications
23Nail psoriasisHaving discoloured, lifting, pitted nails affected with psoriasis
24PainExperiencing an unpleasant physical sensation that aches, hurts in one or more joints or the spine
25Participation in social activitiesAbility to participate in social activities
26Structural joint damageJoin deformity, damage, instability to one or more joints or the spine
27Physical functionBeing able to perform physical activities (includes upper/lower extremity functioning, balance)
28Psoriasis symptomsExperiencing itching, dryness, pain, plaques, thickness, cracks, bleeding, scaling of affected skin including genital areas and the scalp
29Self-managementBeing able to effectively decrease or minimise the physical impact of disease on oneself (eg, choice of non-pharmacological interventions, prevention of disease worsening, use of aids, diet, lifestyle, pacing, relaxation etc)
30Self-worthShame, self-esteem, feeling accepted or rejected by others (can range from feeling valued to feeling helpless, useless, ashamed, guilty or rejected)
31Sleep qualityBeing able to have a restful sleep
32Social supportAvailability of family members and friends for help
33Spine symptomsBack/spine symptoms of pain, stiffness
34StiffnessExperiencing resistance or rigidity in one or more joints, tendons or the spine, which prevents smooth and full range of motion
35StressFeeling under pressure and under tension
36SwellingEnlargement of one or more joints
37Systemic inflammationBlood test such as the acute-phase reactants ESR and/or C reactive protein
38Treatment burdenImpact of treatment and monitoring of disease or treatment (eg, financial or time commitment)
39Unpredictability of disease activityUncertainty in the short term of being symptom free or able to engage in activities
  • Domains appear in alphabetical order.

  • *Domain definitions represent focus group participantsā€™ descriptions of the corresponding domain and were reviewed by the working group. ESR, erythrocyte sedimentation rate.