Demographic characteristics of patients with TRAPS at the time of enrolment
| Characteristics | Whole TRAPS population | Paediatric patients | Adult patients |
|---|---|---|---|
| Number of patients | 158 | 53 | 105 |
| Male:female | 78:80 | 31:22 | 47:58 |
| Age at onset (years) | 4.3 (0–63) | 1.5 (0–13) | 8 (0–63) |
| Age at diagnosis (years) | 25.9 (0–77) | 6.2 (0–15) | 37.9 (1–77) |
| Age at enrolment (years) | 33.8 (3–77) | 11.2 (3–18) | 42.3 (19–77) |
| Diagnostic delay (years) | 10.3 (0–77) | 2.7 (0–14) | 22.4 (0–77) |
| Disease duration (years) | 15.6 (1–77) | 6.6 (1–17) | 27.7 (1–77) |
| Disease onset at <18 years, n (%) | 123 (78) | 53 | 70 (67) |
| Disease onset aged ≥18 years, n (%) | 35 (22) | – | 35 (33) |
Results are shown as median (range) unless stated otherwise.