Impact |
Physical functioning | 11 | NL3 3: | I am physically limited by this disease. When it would really be gone, I would be able to behave differently. The whole day, really. I could do so much more, I would be so much more mobile so to speak. Because I limit my activities to reduce the disease activity. |
Activities of daily living | 12 | MOD | What are the features of a good period for you personally? |
NL2 3: | Much more active, you are in the mood to go to the market |
NL2 4: | When you feel good, you go out, do this, do that, you know... |
NL2 2: | That you can do your normal daily activities. That you're not depending on anyone else. |
13 | AT2 2: | The main difference I can feel, when one can feel it [active disease] is in performing everyday activities. For example putting on your socks can turn into a torture. Then you already know that the disease is active again. |
Independence | 14 | UK2 G: | … independence of personal care and independence of the jobs in the house that I think of as being my jobs and being able to do some of the fun things as well. Before, if I cooked dinner that would be me done for the entire weekend. I love cooking, the kids really love my cooking and … but for me to do them a Sunday roast that would be me absolutely done, and there was be no frills on it. Whereas now I can go to the park as well and, so you kind of get like I like to be independent. |
15 | AT1 1: | I'm happy that I can open a jar with cucumbers without going to somebody else and asking for help—this is what always reminds me of it [active disease]… |