Domain number (by order of importance) | Domain and short defining statement | Median order of importance (range of importance 1–16) | % patients ordering this domain in the top 8 | % patients ordering this domain in the lowest 4 | % patients considering this domain a priority |
---|---|---|---|---|---|
1 | Pain (pain in joints, spine and skin) | 2.56 | 95 | 0 | 84 |
2 | Skin problems (including itching) | 6.20 | 65 | 13 | 53 |
3 | Fatigue (being physically tired, but also mental fatigue, lack of energy) | 6.43 | 74 | 6 | 43 |
4 | Ability to work/leisure (ability to work and/or do leisure activities) | 6.67 | 67 | 9 | 50 |
5 | Functional capacity (capacity to perform daily physical activities, loss of independence) | 7.23 | 64 | 12 | 46 |
6 | Feeling of discomfort (discomfort and annoyance with everyday tasks) | 7.58 | 64 | 7 | 26 |
7 | Sleep disturbance (sleep quality, sleep interruptions) | 7.96 | 56 | 25 | 36 |
8 | Anxiety, fear and uncertainty (eg, about the future, treatments, fear of loneliness) | 8.42 | 50 | 19 | 33 |
9 | Coping (adjustment to the disease, managing, being in charge, making do with the disease) | 8.45 | 53 | 17 | 35 |
10 | Embarrassment and/or shame due to appearance (feeling embarrassed/ashamed due to appearance) | 9.74 | 40 | 35 | 24 |
11 | Social participation (participating fully in social activities) | 10.01 | 33 | 30 | 23 |
12 | Depression (feeling sad or depressed) | 10.06 | 39 | 32 | 24 |
13 | Relationship with family (relationship with family and/or people very close to you) | 10.51 | 34 | 44 | 30 |
14 | Concentration difficulties (difficulty concentrating and memorising) | 10.61 | 32 | 37 | 19 |
15 | Rejection and discrimination due to appearance (being rejected and discriminated against because of appearance) | 11.60 | 22 | 53 | 12 |
16 | Sexual life (sexual difficulties or dissatisfaction) | 11.61 | 25 | 52 | 15 |
Patients gave each domain both an order of importance (from 1 to 16) and a priority rating (yes/no). The 12 domains with highest median rank were retained, and domain 13 was merged with domain 11 for the final PsAID scores.
PsA, psoriatic arthritis; PsAID, PsA Impact of Disease.