Sixteen domains of health identified as important by 12 patients with PsA and their order of importance and priority ratings based on information from 139 patients with PsA
Domain number (by order of importance) | Domain and short defining statement | Median order of importance (range of importance 1–16) | % patients ordering this domain in the top 8 | % patients ordering this domain in the lowest 4 | % patients considering this domain a priority |
---|---|---|---|---|---|
1 | Pain (pain in joints, spine and skin) | 2.56 | 95 | 0 | 84 |
2 | Skin problems (including itching) | 6.20 | 65 | 13 | 53 |
3 | Fatigue (being physically tired, but also mental fatigue, lack of energy) | 6.43 | 74 | 6 | 43 |
4 | Ability to work/leisure (ability to work and/or do leisure activities) | 6.67 | 67 | 9 | 50 |
5 | Functional capacity (capacity to perform daily physical activities, loss of independence) | 7.23 | 64 | 12 | 46 |
6 | Feeling of discomfort (discomfort and annoyance with everyday tasks) | 7.58 | 64 | 7 | 26 |
7 | Sleep disturbance (sleep quality, sleep interruptions) | 7.96 | 56 | 25 | 36 |
8 | Anxiety, fear and uncertainty (eg, about the future, treatments, fear of loneliness) | 8.42 | 50 | 19 | 33 |
9 | Coping (adjustment to the disease, managing, being in charge, making do with the disease) | 8.45 | 53 | 17 | 35 |
10 | Embarrassment and/or shame due to appearance (feeling embarrassed/ashamed due to appearance) | 9.74 | 40 | 35 | 24 |
11 | Social participation (participating fully in social activities) | 10.01 | 33 | 30 | 23 |
12 | Depression (feeling sad or depressed) | 10.06 | 39 | 32 | 24 |
13 | Relationship with family (relationship with family and/or people very close to you) | 10.51 | 34 | 44 | 30 |
14 | Concentration difficulties (difficulty concentrating and memorising) | 10.61 | 32 | 37 | 19 |
15 | Rejection and discrimination due to appearance (being rejected and discriminated against because of appearance) | 11.60 | 22 | 53 | 12 |
16 | Sexual life (sexual difficulties or dissatisfaction) | 11.61 | 25 | 52 | 15 |
Patients gave each domain both an order of importance (from 1 to 16) and a priority rating (yes/no). The 12 domains with highest median rank were retained, and domain 13 was merged with domain 11 for the final PsAID scores.
PsA, psoriatic arthritis; PsAID, PsA Impact of Disease.