Table 4

Wish list of the patients for possible consideration in the generation of the next update of the ASAS/EULAR recommendations for the management of ankylosing spondylitis (AS)

NoTextWish listMain barrier
1Damage of jointsOne should mention not only the hip but also other joints.Peripheral arthritis is usually oligoarticular and affects mainly the lower limbs. Hip involvement is reported as a bad prognostic sign
  • Evaluation of non-pharmacological treatment should be given more importance

Insufficient data of non-pharmacological treatment, only 15% of studies reported effects of non-pharmacological treatment in AS
  • Non-pharmacological treatment needs further explanation of quality and quantity

  • Patient education should be improved

Effect of isolated education for AS is not yet clear
  • Communication between family doctor and specialist should be enhanced

PhysiotherapyAppropriate exercise is crucial to managing AS. Regular home exercise is the basis of non-pharmacological treatment. Physiotherapy may be completed with other procedures (balneotherapy or electrotherapy)Specific physical modalities have not been studied
Self-help groupsPatients who take an active interest in their condition can positively influence the outcome of AS. Using practical advice of self-help groups to manage the condition is strongly recommended by stakeholdersSelf-help groups have not been studied for their effect on pain or functional outcomes
8SulfasalazineComment on the role of sulfasalazine for the treatment of uveitis, inflammatory bowel disease, psoriasisAdditional to the role of sulfasalazine in peripheral arthritis associated with spondyloarthritis, sulfasalazine may play a role in the treatment of uveitis, inflammatory bowel disease, psoriasis, but there are insufficient data on these options