Table 7

 Priority areas in transitional care for further research and development

Self advocacy skills
Young people making own clinic appointments, ringing with own queries
Starting transition early
Preparation for joint injections under local anaesthetic
Provision and/or addressing the following areas: dietary calcium/vitamin D, dental health, sleep
Availability of concurrent visits for parents if young person seen alone
Informational resources
Availability of patient and parent information detailing the transition process
Adult rheumatology interface
Availability of preparatory visits to the adult clinic
Administrative transfer with the adult rheumatology team
Provision of non-medical transfer summaries for the adult team