Demographic and disease information (postal surveys). Results are shown as No (%)
| Second postal survey (stage 5) | |||
|---|---|---|---|
| First postal survey (stage 4) UK (n=121) | UK (n=210) | The Netherlands (n=154) | |
| Demographic details | |||
| Men (%) | 92 (76) | 150 (72) | 110 (71) |
| Women (%) | 29 (24) | 59 (28) | 44 (29) |
| Age range (years) | 21–77 | 19–82 | 20–79 |
| Mean age (SD) (years) | 47.6 (12.4) | 46.1 (12.4) | 47.6 (11.8) |
| Married or living as married (%) | 85 (72) | 144 (69) | 126 (82) |
| Disease information | |||
| Range of duration of illness (years) | 1.5–50 | 1–62 | 3–51 |
| Median (mean) duration of illness in years | 15 (16.3) | 18 (19.6) | 19 (20.8) |
| No reporting peripheral involvement (%) | 85 (70) | 174 (83) | 112 (71) |
| No reporting uveitis (%) | 30 (25) | 48 (23) | 36 (23) |
| No reporting IBD (%) | 14 (12) | 31 (15) | 22 (14) |
| Perceived AS severity | |||
| Mild (%) | 18 (15) | 22 (11) | 36 (25) |
| Moderate (%) | 50 (42) | 76 (37) | 69 (47) |
| Quite severe (%) | 45 (38) | 93 (45) | 35 (24) |
| Very severe (%) | 5 (4) | 16 (8) | 6 (4) |
| Perceived general health status | |||
| Excellent/very good (%) | 12 (10) | 10 (5) | 7 (5) |
| Good (%) | 48 (39) | 58 (28) | 48 (32) |
| Fair (%) | 43 (36) | 100 (49) | 83 (55) |
| Poor (%) | 18 (15) | 38 (18) | 14 (9) |
| Perception of today | |||
| Very good (%) | 11 (9) | 11 (5) | 13 (8) |
| Good (%) | 71 (61) | 101 (50) | 95 (62) |
| Bad (%) | 34 (29) | 83 (41) | 42 (27) |
| Very bad (%) | 1 (1) | 8 (4) | 4 (3) |