SDI/BILAG1-151, SF-20+1-151, drug scores | Mean (SD) | Median; range |
Total damage | 1.2 (1.5) [1.5 (1.6)] | 1; 0–7 [1; 0–7] |
Neuropsychiatric damage | 0.21 (0.49) [0.25 (0.61)] | 0; 0–2 [0; 0–3] |
Renal damage | 0.31 (0.74) [0.32 (0.72)] | 0; 0–3 [0; 0–3] |
Musculoskeletal damage | 0.27 (0.56) [0.34 (0.71)] | 0; 0–3 [0; 0–3] |
BILAG total score | 5.2 (3.8) | 4; 0–17 |
General BILAG | 1 (1.1) | 1; 0–9 |
Mucocutaneous BILAG | 0.7 (1.2) | 0; 0–9 |
Neurological BILAG | 0.3 (0.9) | 0; 0–9 |
Musculoskeletal BILAG | 1.2 (2) | 1;0–9 |
Cardiovascular/respiratory BILAG | 0.3 (0.6) | 0; 0–3 |
Vasculitis BILAG | 0.4 (0.7) | 0; 0–3 |
Renal BILAG | 0.3 (0.9) | 0; 0–3 |
Haematological BILAG | 1 (1.2) | 0; 0–9 |
SF-20+: physical functioning* | 58 (34) | 67; 0–100 |
SF-20+: role functioning* | 54 (42) | 50; 0–100 |
SF-20+: social functioning* | 71 (30) | 80; 0–100 |
SF-20+: mental health* | 64 (21) | 68; 16–100 |
SF-20+: health perception* | 44 (25) | 42; 0–100 |
SF-20+: pain | 53 (35) | 50; 0–100 |
SF-20+: fatigue | 59 (29) | 70; 0–100 |
Drug score | 1.2 (1.3) | 1; 0–3 |
Organ damage item only given if mean score at inclusion ⩾0.1 (and at three years >0.12). Lower scores always mean better health except for the SF-20+ scores marked with *.
↵1-151 SDI = SLICC/ACR Damage Index; SF-20+ = Short Form 20 with an extra question about fatigue.