TY - JOUR T1 - EULAR/PReS standards and recommendations for the transitional care of young people with juvenile-onset rheumatic diseases JF - Annals of the Rheumatic Diseases JO - Ann Rheum Dis SP - 639 LP - 646 DO - 10.1136/annrheumdis-2016-210112 VL - 76 IS - 4 AU - Helen E Foster AU - Kirsten Minden AU - Daniel Clemente AU - Leticia Leon AU - Janet E McDonagh AU - Sylvia Kamphuis AU - Karin Berggren AU - Philomine van Pelt AU - Carine Wouters AU - Jennifer Waite-Jones AU - Rachel Tattersall AU - Ruth Wyllie AU - Simon R Stones AU - Alberto Martini AU - Tamas Constantin AU - Susanne Schalm AU - Berna Fidanci AU - Burak Erer AU - Erkan Dermikaya AU - Seza Ozen AU - Loreto Carmona Y1 - 2017/04/01 UR - http://ard.bmj.com/content/76/4/639.abstract N2 - To develop standards and recommendations for transitional care for young people (YP) with juvenile-onset rheumatic and musculoskeletal diseases (jRMD). The consensus process involved the following: (1) establishing an international expert panel to include patients and representatives from multidisciplinary teams in adult and paediatric rheumatology; (2) a systematic review of published models of transitional care in jRMDs, potential standards and recommendations, strategies for implementation and tools to evaluate services and outcomes; (3) setting the framework, developing the process map and generating a first draft of standards and recommendations; (4) further iteration of recommendations; (5) establishing consensus recommendations with Delphi methodology and (6) establishing standards and quality indicators. The final consensus derived 12 specific recommendations for YP with jRMD focused on transitional care. These included: high-quality, multidisciplinary care starting in early adolescence; the integral role of a transition co-ordinator; transition policies and protocols; efficient communications; transfer documentation; an open electronic-based platform to access resources; appropriate training for paediatric and adult healthcare teams; secure funding to continue treatments and services into adult rheumatology and the need for increased evidence to inform best practice. These consensus-based recommendations inform strategies to reach optimal outcomes in transitional care for YP with jRMD based on available evidence and expert opinion. They need to be implemented in the context of individual countries, healthcare systems and regulatory frameworks. ER -