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OP0346-PARE A partnership in implementation: adapting an osteoarthritis guidebook across european cultures – with patients, for patients
  1. L. Campbell1,
  2. JIGSAW-E Patient Champions1,2,3,4,5,6,7,8,
  3. S. Blackburn1,
  4. J. Meesters8,
  5. M. De Wit2,
  6. D. Schiphof8,
  7. T. Vliet Vlieland8,
  8. S. Bierma-Zeinstra7,
  9. N. Østerås6,
  10. S. Pais3,
  11. E. Roos4,
  12. N. Evans1,
  13. K. Dziedzic1
  1. 1Research Institute for Primary Care and Health Sciences, Keele University, Keele, UK
  2. 2VU University Medical Center, Amsterdam, Netherlands
  3. 3Centre for Biomedical Research, University of Algarve, Algarve, Portugal
  4. 4University of Southern Denmark, Odense, Denmark
  5. 5University of Algarve, Algarve, Portugal
  6. 6Diakonhjemmet Hospital, Oslo, Norway
  7. 7Erasmus MC-University Medical Centre, Rotterdam
  8. 8Leiden University Medical Center (LUMC), Leiden, Netherlands


Background A guidebook for patients with osteoarthritis (OA) was co-developed with UK patients during an OA research study.1–3 The JIGSAW-E project is now disseminating and implementing the OA management guidelines and Guidebook in clinical practice in UK, Netherlands, Norway, Denmark and Portugal.4

Objectives To study the translation and cultural adaptations of the OA Guidebook appropriate for local context and use by patient champions and health professionals together.

Methods A project launch meeting led to the creation of an international panel of Patient Champions and the adaptation of the OA Guidebook as a priority project. 15 Patient Champions with OA were collaborative partners of the project’s local Communities of Practices (CoP) (UK:2, Norway:2, Netherlands:5, Denmark:5, Portugal:1) (figure 1). CoPs also engaged with OA patient organisations. Cultural adaptation of the OA Guidebook by CoPs: 1) review of UK OA Guidebook and existing written patient information; 2) translation; 3) cultural adaptation: review of content, images and layout; 4) consistency check with national guidelines; 5) production; 6) review and approval; 7) shared learning across countries via Skype. Each CoP adopted a process appropriate to their specific context

Abstract OP0346-PARE – Table 1 Development of culturally adapted versions of the OA Guidebook in each country.

Abstract OP0346-PARE – Figure 1 The JIGSAW-E international panel of patient champions

Conclusions It is feasible and effective to involve patient champions in the cultural adaptation and dissemination of consistent and accurate patient information to support the implementation of OA guidelines in clinical practice.

References [1] ] Health Expect2014;17:164–73.

[2] ] BMC Musculoskelet Disord2014;15:427.

[3] ] Osteoarthritis Cartilage2018;26:43–53.

[4] ] Physiotherapy2016;102:e138–9.

Acknowledgements Thank you to all the Patient Champions for their contributions to JIGSAW-E. A. Rosager and L. Baumbasch led the Danish adaptation. JIGSAW-E is funded by EIT Health. KD is part funded by a NIHR Knowledge Mobilisation Research Fellowship (KMRF201403002). The MOSAICS study was funded by NIHR Programme Grant (RP-PG-0407–10386).

Disclosure of Interest None declared

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