Recommendations for collaborative paediatric research including biobanking in Europe: a Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative

Jasmin B Kuemmerle-Deschner; Sandra Hansmann; Nico M Wulffraat; Sebastiaan J Vastert; Kristien Hens; Jordi Anton; Tadej Avcin; Alberto Martini; Isabelle Koné-Paut; Yosef Uziel; Angelo Ravelli; Carine Wouters; David Shaw; Seza Özen; Andreas Eikelberg; Berent J Prakken; Nicolino Ruperto; Gerd Horneff; Tamas Constantin; Michael W Beresford; Marijn Sikken; Helen E Foster; Iris Haug; Sabrina Schuller; Christine Jägle; Susanne M Benseler

doi:10.1136/annrheumdis-2017-211904

Article info

Recommendation

Recommendations for collaborative paediatric research including biobanking in Europe: a Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative

Authors

Jasmin B Kuemmerle-Deschner Division of Rheumatology, Department of Pediatrics, University Hospital Tuebingen, Tübingen, Germany PubMed articles Google scholar articles
Sandra Hansmann Division of Rheumatology, Department of Pediatrics, University Hospital Tuebingen, Tübingen, Germany PubMed articles Google scholar articles
Nico M Wulffraat Paediatric Rheumatology, Wilhelmina Children’s Hospital, University Medical Center, Utrecht, The Netherlands PubMed articles Google scholar articles
Sebastiaan J Vastert Paediatric Rheumatology, Wilhelmina Children’s Hospital, University Medical Center, Utrecht, The Netherlands PubMed articles Google scholar articles
Kristien Hens Department of Philosophy, University of Antwerp, Antwerp, Belgium PubMed articles Google scholar articles
Jordi Anton Pediatric Rheumatology, Hospital Sant Joan de Déu, Barcelona, Spain PubMed articles Google scholar articles
Tadej Avcin Departments of Allergy, Rheumatology and Clinical Immunology, University Children’s Hospital, University Medical Centre Ljubljana, Ljubljana, Slovenia PubMed articles Google scholar articles
Alberto Martini Department of Paediatrics, University of Genoa, Gaslini Children’s Hospital, G. Gaslini Research Institute, Genoa, Italy PubMed articles Google scholar articles
Isabelle Koné-Paut Department of Paediatric Rheumatology and Haematology, CEREMAI, GHU Paris-Sud - Hôpital de Bicêtre, APHP, Le Kremlin-Bicêtre, France PubMed articles Google scholar articles
Yosef Uziel Pediatric Rheumatology Unit, Department of Pediatrics, Meir Medical Center, Kfar-Saba, Kfar Saba, Israel Sackler Faculty of Medicine, Tel-Aviv University, Tel Aviv, Israel PubMed articles Google scholar articles
Angelo Ravelli Department of Paediatrics, University of Genoa, Gaslini Children’s Hospital, G. Gaslini Research Institute, Genoa, Italy PubMed articles Google scholar articles
Carine Wouters Department of Microbiology and Immunology, Laboratory Paediatric Immunology, UZ Leuven Hospital, Leuven, Belgium PubMed articles Google scholar articles
David Shaw Department of Health, Ethics and Society, CAPHRI Research Institute, Maastricht University, Maastricht, The Netherlands Institute for Biomedical Ethics, University of Basel, Basel, Switzerland PubMed articles Google scholar articles
Seza Özen Department of Pediatrics, Hacettepe University, Ankara, Turkey PubMed articles Google scholar articles
Andreas Eikelberg Division of Rheumatology, Department of Pediatrics, University Hospital Tuebingen, Tübingen, Germany PubMed articles Google scholar articles
Berent J Prakken Paediatric Rheumatology, Wilhelmina Children’s Hospital, University Medical Center, Utrecht, The Netherlands PubMed articles Google scholar articles
Nicolino Ruperto Department of Paediatrics, University of Genoa, Gaslini Children’s Hospital, G. Gaslini Research Institute, Genoa, Italy PubMed articles Google scholar articles
Gerd Horneff Department of General Pediatrics, Asklepios Clinic Sankt Augustin, Sankt Augustin, Germany PubMed articles Google scholar articles
Tamas Constantin Reumatológia, Immunológia, Gyermekgyógyászati Klinika, Budapest, Hungary PubMed articles Google scholar articles
Michael W Beresford Department of Paediatric Rheumatology, Institute for Translational Medicine, University of Liverpool, Alder Hey Children’s NHS Foundation Trust, Liverpool, UK PubMed articles Google scholar articles
Marijn Sikken JIA Patient Council, Department of Paediatric Rheumatology, University Medical Center Utrecht, Wilhelmina Children’s Hospital, Utrecht, The Netherlands PubMed articles Google scholar articles
Helen E Foster Department of Paediatric Rheumatology, Great North Children’s Hospital, Institute of Cellular Medicine Musculoskeletal Research Group, Newcastle University, Newcastle upon Tyne, UK PubMed articles Google scholar articles
Iris Haug Division of Rheumatology, Department of Pediatrics, University Hospital Tuebingen, Tübingen, Germany PubMed articles Google scholar articles
Sabrina Schuller Division of Rheumatology, Department of Pediatrics, University Hospital Tuebingen, Tübingen, Germany PubMed articles Google scholar articles
Christine Jägle Division of Rheumatology, Department of Pediatrics, University Hospital Tuebingen, Tübingen, Germany PubMed articles Google scholar articles
Susanne M Benseler Division of Rheumatology, Department of Pediatrics, University Hospital Tuebingen, Tübingen, Germany Alberta Children’s Hospital Research Institute, Calgary, Alberta, Canada PubMed articles Google scholar articles

Correspondence to Susanne M Benseler, Rheumatology, Department of Pediatrics, Alberta Children’s Hospital, University of Calgary, Calgary, AB T3B6A8, Canada; Susanne.Benseler{at}albertahealthservices.ca

View Full Text

Citation

Kuemmerle-Deschner JB, Hansmann S, Wulffraat NM, et al

Recommendations for collaborative paediatric research including biobanking in Europe: a Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative

Annals of the Rheumatic Diseases 2018;77:319-327.

Publication history

Received June 7, 2017
Revised August 19, 2017
Accepted September 8, 2017
First published October 11, 2017.

Online issue publication

April 19, 2018

Request permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.

Main menu

Authors

Citation

Publication history

Request permissions

Copyright information

Log in using your username and password

Main menu

Log in using your username and password

You are here

Authors

Citation

Publication history

Request permissions

Copyright information

Read the full text or download the PDF:

Log in using your username and password