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EULAR recommendations for patient education for people with inflammatory arthritis
  1. Heidi A Zangi1,
  2. Mwidimi Ndosi2,
  3. Jo Adams3,
  4. Lena Andersen4,
  5. Christina Bode5,
  6. Carina Boström6,
  7. Yvonne van Eijk-Hustings7,8,
  8. Laure Gossec9,10,
  9. Jana Korandová11,
  10. Gabriel Mendes12,
  11. Karin Niedermann13,
  12. Jette Primdahl14,15,16,
  13. Michaela Stoffer17,
  14. Marieke Voshaar18,
  15. Astrid van Tubergen19
  1. 1Department of Rheumatology, National Advisory Unit on Rehabilitation in Rheumatology, Diakonhjemmet Hospital, Oslo, Norway
  2. 2School of Healthcare, University of Leeds, Leeds, UK and Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK
  3. 3Centre for Innovation and Leadership in Health Faculty of Health Sciences University of Southampton Highfield, Southampton, UK
  4. 4Nyborg, Denmark
  5. 5Department of Psychology, University of Twente, Health & Technology, Enschede, The Netherlands
  6. 6Division of physiotherapy, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden
  7. 7Department of Patient & Care/ Department of Rheumatology, Maastricht University Medical Center, Maastricht, The Netherlands
  8. 8CAPHRI, School for Public Health and Primary Care, University of Maastricht, Maastricht, The Netherlands
  9. 9Sorbonne Universités, Institut Pierre Louis d'Epidémiologie et de Santé Publique, Paris, France
  10. 10 Department of rheumatology, AP-HP, Pitié Salpêtrière Hospital, Paris, France
  11. 11Institute of Rheumatology, Prague, Czech Republic
  12. 12Department of National Team, Portuguese Cycling Federation, Lisbon, Portugal
  13. 13Institute of Physiotherapy, School of Health Professions, Zurich University of Applied Sciences, Winterthur, Switzerland
  14. 14Institute for Regional Health Research, University of Southern Denmark, Odense, Denmark
  15. 15Hospital of Southern Jutland, Aabenraa, Denmark
  16. 16King Christian X's Hospital for Rheumatic Diseases, Graasten, Denmark
  17. 17Division of Rheumatology, Department of Medicine 3, Medical University of Vienna, Vienna, Austria
  18. 18Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands
  19. 19Department of Medicine, Division of Rheumatology, Maastricht University Medical Center, Maastricht, The Netherlands
  1. Correspondence to Dr Heidi A Zangi, National Advisory Unit on Rehabilitation in Rheumatology, Department of rheumatology, Diakonhjemmet Hospital, PO Box 23 Vinderen, Oslo 0319, Norway; heidi.zangi{at}diakonsyk.no

Abstract

Objectives The task force aimed to: (1) develop evidence-based recommendations for patient education (PE) for people with inflammatory arthritis, (2) identify the need for further research on PE and (3) determine health professionals’ educational needs in order to provide evidence-based PE.

Methods A multidisciplinary task force, representing 10 European countries, formulated a definition for PE and 10 research questions that guided a systematic literature review (SLR). The results from the SLR were discussed and used as a basis for developing the recommendations, a research agenda and an educational agenda. The recommendations were categorised according to level and strength of evidence graded from A (highest) to D (lowest). Task force members rated their agreement with each recommendation from 0 (total disagreement) to 10 (total agreement).

Results Based on the SLR and expert opinions, eight recommendations were developed, four with strength A evidence. The recommendations addressed when and by whom PE should be offered, modes and methods of delivery, theoretical framework, outcomes and evaluation. A high level of agreement was achieved for all recommendations (mean range 9.4–9.8). The task force proposed a research agenda and an educational agenda.

Conclusions The eight evidence-based and expert opinion-based recommendations for PE for people with inflammatory arthritis are intended to provide a core framework for the delivery of PE and training for health professionals in delivering PE across Europe.

  • Arthritis
  • Multidisciplinary team-care
  • Patient perspective

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