Article Text

Concise report
Development of patient-centred standards of care for rheumatoid arthritis in Europe: the eumusc.net project
  1. Michaela A Stoffer1,
  2. Josef S Smolen1,
  3. Anthony Woolf2,
  4. Ales Ambrozic3,
  5. Ailsa Bosworth4,
  6. Loreto Carmona5,
  7. Veronika Fialka-Moser6,
  8. Estibaliz Loza5,
  9. Pawel Olejnik7,
  10. Ingemar F Petersson8,
  11. Till Uhlig9,
  12. Tanja A Stamm1,
  13. the eumusc.net-working group
  1. 1Internal Medicine III, Division of Rheumatology, Medizinische Universität Wien, Vienna, Austria
  2. 2Duke of Cornwall Rheumatology Unit, Royal Cornwall Hospital, Truro Cornwall, UK
  3. 3University Medical Centre Ljubljana, Ljubljana, Slovenia
  4. 4National Rheumatoid Arthritis Society, Berkshire, UK
  5. 5Instituto de Salud Musculoesqueletica, Madrid, Spain
  6. 6Department for Physical Medicine and Rehabilitation, Medizinische Universität Wien, Vienna, Austria
  7. 7Instytut Reumatologii, Warsaw, Poland
  8. 8Orthopedics and Rheumatology, Clinical Sciences, Lund University, Lund, Sweden
  9. 9National Resource Center for rehabilitation in Rheumatology, Diakonhjemmet Hospital, Oslo, Norway
  1. Correspondence to Dr Tanja Stamm, Department of Internal Medicine III, Division of Rheumatology, Medical University of Vienna, Währinger Gürtel 18-20, Vienna A - 1090, Austria; tanja.stamm{at}meduniwien.ac.at

Abstract

Objective The eumusc.net project is a European Union (EU) commission and European League Against Rheumatism (EULAR)funded project that aims to facilitate equal standards for musculoskeletal health in all EU countries. One work-package was to develop evidence-based and patient-centred standards of care (SOC), for rheumatoid arthritis (RA) understandable for patients and professionals across Europe.

Method A review of documents covering clinical practice ‘guidelines’ and SOC for RA was conducted. The obtained documents were evaluated using the Appraisal of Guidelines for Research and Evaluation II (AGREE II) criteria, and all recommended methods to treat RA were extracted. Based on this information, a three-round Delphi exercise was performed including a consensus group meeting of 21 researchers and patient representatives.

Results 16 patient-centred SOC were formulated including a lay version in the format of a checklist. An example is SOC 3: ‘People with RA should receive a treatment plan developed individually between them and their clinician at each visit.’ The corresponding checklist question reads: ‘Have I received a treatment plan which includes an explanation of my management, expected goals and outcomes and important contact details?’

Conclusions The SOC for RA will be available in all 23 official European languages and contribute to more unified treatment approaches in Europe.

  • Patient Perspective
  • Rehabilitation
  • Health Services Research

This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 3.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/3.0/

Statistics from Altmetric.com

Request Permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.

Supplementary materials

  • Lay summary

    This web only file has been produced by the BMJ Publishing Group from an electronic file supplied by the author(s) and has not been edited for content.

  • Supplementary Data

    This web only file has been produced by the BMJ Publishing Group from an electronic file supplied by the author(s) and has not been edited for content.

    Files in this Data Supplement:

Linked Articles