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Systemic sclerosis in Europe: first report from the EULAR Scleroderma Trials And Research (EUSTAR) group database
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  1. A Tyndall,
  2. U Mueller-Ladner,
  3. M Matucci-Cerinic,
  4. on behalf of EUSTAR
  1. Department of Rheumatology, Felix Platter Spital, CH-4012, Basel, Switzerland
  1. Correspondence to:
    Professor A Tyndall
    alan.tyndallfps-basel.ch

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Under the auspices of the EULAR Standing Committee for International clinical Studies Including therapeutic Trials (ESCISIT), the EULAR Scleroderma Trials And Research (EUSTAR) group was officially founded in June 2004 during the Berlin EULAR congress. This was the culmination of 18 months’ intense activity by many people across Europe, and a summary is available on the website (http://www.EUSTAR.org). The logo (fig 1) features a star from a painting by Paul Klee, who himself succumbed to this dreadful disease.

Figure 1

 EUSTAR logo.

An integral part of the EUSTAR mission was the development of a Minimal Essential Data Set, called MEDS. This consists of a simple two page form …

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