Top 10 most recurrent patient-reported symptoms and correspondent severity rank in giant cell arteritis (GCA) and Comparators (COM)
| Item | Frequency in GCA | Severity in GCA | Frequency in COM | Severity in COM | Examples of patient's own words |
|---|---|---|---|---|---|
| Headache | 1 | 1, 2, 8 | 1 | 1, 2, 5 | Headaches; Sore head; Thumping headache |
| Jaw claudication | 2 | 3, 6 | 6 | 0 | Jaw ache; Pain in jaw and teeth |
| Shoulder/neck pain | 3 | 3, 4, 5, | 0 | 0 | Shoulder upper arm pain |
| Fatigue | 4 | 5, 6, 10 | 3 | 3, 6, 7 | Severe tiredness; Fatigue; No energy and exhausted |
| Myalgia or muscle weakness | 5 | 5, 7, 10 | 4 | 3 | Aching muscles; Achey limbs; Loss of strength in arms and legs |
| Blurred vision | 6 | 10 | 5 | 4, 8 | Blurred vision |
| Scalp tenderness | 7 | 8 | 0 | 4 | Irritation to the scalp; Tender scalp |
| Loss of appetite | 8 | 0 | 0 | Lack of appetite | |
| Flu-like symptoms | 9 | 9 | 0 | 0 | General ill feeling; Flu-like symptoms; Unwell |
| Arthralgia or arthritis | 10 | 9 | 2 | 3 | Hip, knee more on right side; Pain in back of neck, ankles, wrists, and chest |
| Other ENT | 0 | 0 | 7 | 4 | Severe sinusitis; sore inside gums |
| Sudden visual loss | 0 | 0 | 8 | Loss of eyesight to both eyes; Vision loss | |
| Night sweats | 0 | 0 | 9 | 4, 8 | Night sweats; Night fever sweats |
| Painful eyes | 0 | 9 | 10 | 0 | Shooting pain left eye; Pain right eye |