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The EULAR Outcome Measures Library: an evolutional database of validated patient-reported instruments
  1. Isabel Castrejón1,
  2. Laure Gossec2,
  3. Loreto Carmona3
  1. 1Division of Rheumatology, Rush University Medical Center, Chicago, Illinois, USA
  2. 2Department of Rheumatology, UPMC Univ Paris 06, GRC-UPMC 08 (EEMOIS), AP-HP, Pitié Salpêtrière Hospital, Paris, France
  3. 3Instituto de Salud Musculoesquelética, Madrid, Spain
  1. Correspondence to Dr Isabel Castrejón, Division of Rheumatology, Rush University Medical Center, 1611 West Harrison Street, Suite 510, Chicago, IL 60612, USA; isabel_castrejon{at}rush.edu, isabelcastrejonf{at}gmail.com

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Multiple instruments to assess the patient's perception of disease activity and other critical domains are used in rheumatology to evaluate treatment response and guide clinical decisions. These instruments, known as patient-reported outcomes (PROs), allow to incorporate the patient's perspective.1 Despite PROs being increasingly recognised as important measures, there is great heterogeneity in their use.2 In order to overcome the difficulty in accessing validated PROs and the heterogeneity in its use,3 an initiative to generate a repository of the main cross-culturally validated PROs in rheumatic and musculoskeletal diseases (RMDs) was endorsed by the European League Against Rheumatism (EULAR). The main idea was to develop a structured Outcome Measures Library (OML) that would include a comprehensive database of validated PROs.

The international taskforce defined …

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