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Development of patient-centred standards of care for osteoarthritis in Europe: the eumusc.net-project
  1. Michaela A Stoffer1,
  2. Josef S Smolen1,
  3. Anthony Woolf2,
  4. Ales Ambrozic3,
  5. Florian Berghea4,
  6. Annelies Boonen5,
  7. Ailsa Bosworth6,
  8. Loreto Carmona7,
  9. Maxime Dougados8,9,10,
  10. Maarten de Wit11,
  11. Josephine Erwin2,
  12. Veronika Fialka-Moser12,
  13. Ruxandra Ionescu4,
  14. Anne-Maree Keenan13,
  15. Estibaliz Loza7,
  16. Rikke H Moe14,
  17. Rolf Greiff15,
  18. Pawel Olejnik16,
  19. Ingemar F Petersson17,
  20. Anne-Christine Rat18,
  21. Blaz Rozman3,
  22. Britta Strömbeck17,
  23. Lorraine Tanner6,
  24. Till Uhlig14,
  25. Theodora P M Vliet Vlieland19,
  26. Tanja A Stamm1,
  27. The eumusc.net WP 5 Expert Panel
  1. 1Division of Rheumatology, Department of Medicine 3, Medical University of Vienna, Vienna, Austria
  2. 2Royal Cornwall Hospital, Truro Cornwall, UK
  3. 3University Medical Centre Ljubljana, Ljubljana, Slovenia
  4. 4Universitatea de Medicina si Farmacie Carol Davila, Bucharest, Romania
  5. 5Maastricht University Medical Center, Maastricht, The Netherlands
  6. 6National Rheumatoid Arthritis Society, Berkshire, UK
  7. 7Instituto de Salud Musculoesqueletica, Madrid, Spain
  8. 8Paris Descartes University, Paris, France
  9. 9Department of Rheumatology—Hôpital Cochin. Assistance Publique—Hôpitaux de Paris, Paris, France
  10. 10INSERM (U1153): Clinical Epidemiology and biostatistics, PRES Sorbonne Paris-Cité, Paris, France
  11. 11Reumapatientenbond, Amersfoort, The Netherlands
  12. 12Department of Physical Medicine and Rehabilitation, Medical University of Vienna, Vienna, Austria
  13. 13University of Leeds and NIHR Leeds Musculoskeletal Biomedical Research Unit, Leeds, UK
  14. 14National Advisory Unit on Rehabilitation in Rheumatology (NKRR), Oslo, Norway
  15. 15Rheumatikerförbundet, Swedish Rheumatism Association, Stockholm, Sweden
  16. 16Instytut Reumatologii, Warsaw, Poland
  17. 17Orthopedics and Rheumatology, Clinical Sciences, Lund University, Lund, Sweden
  18. 18Université de Lorraine, Université Paris Descartes, Apemac, EA 4360, Nancy, France
  19. 19Leiden University Medical Center, Leiden, The Netherlands
  1. Correspondence to Dr Tanja Stamm, Department of Internal Medicine III, Division of Rheumatology, Medical University of Vienna, Währinger Gürtel 18-20, Vienna A—1090, Austria; tanja.stamm{at}meduniwien.ac.at

Abstract

Objective The eumusc.net project is an initiative founded by the European Community and the European League Against Rheumatism. One aim of the project was to facilitate equal standards for musculoskeletal health across Europe. The aim of this work-package was to develop patient-centred and consensus based standards of care (SOC) for osteoarthritis (OA), which should be available in a professional and a patient version.

Methods A systematic review concerning guidelines dealing with OA was conducted. Furthermore, experts in musculoskeletal diseases were contacted to ensure that ‘grey’ literature was not excluded. Documents that fulfilled predefined inclusion/exclusion criteria were included and all interventions for OA were extracted and categorised. Based on this list of interventions, a three round Delphi exercise with an international and multidisciplinary expert panel, including patient research partners, was performed to achieve expert consensus.

Results Six documents were included and used for further analysis. Out of them, 46 interventions have been extracted and 10 consensus based SOC were formulated. In addition, a patient version, written in a lay-understandable wording and in the format of checklist questions was developed. An example is SOC 5: “People with OA should achieve optimal pain control using pharmacological and non-pharmacological means.” The matching patient-centred checklist question reads: “Do I know how to control pain associated with OA?”

Conclusions The SOC for OA will be available in the 23 languages of the European Union to enhance unified information to patients and professionals and to further harmonise the treatment/care of OA within Europe.

  • Osteoarthritis
  • Health services research
  • Patient perspective

This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/

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