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Measuring participation in people with spondyloarthritis using the social role participation questionnaire
  1. Aileen M Davis1,2,3,7,
  2. Marvilyn P Palaganas1,
  3. Elizabeth M Badley1,4,
  4. Dafna D Gladman1,5,
  5. Robert D Inman5,6,
  6. Monique A Gignac1,4
  1. 1Division of Health Care and Outcomes Research, Toronto Western Research Institute, University Health Network, Toronto, Canada
  2. 2Department of Physical Therapy, University of Toronto, Toronto, Canada
  3. 3Department of Health Policy, Management and Evaluation, University of Toronto, Toronto, Canada
  4. 4Dalla Lana School of Public Health, University of Toronto, Toronto, Canada
  5. 5Department of Medicine, University of Toronto and Toronto Western Hospital, Toronto, Canada
  6. 6Division of Genetics and Development, Toronto Western Research Institute, University Health Network, Toronto, Canada
  7. 7Department of Rehabilitation Science, University of Toronto, Toronto, Canada
  1. Correspondence to Aileen M Davis, Division of Health Care and Outcomes Research, Toronto Western Research Institute, 399 Bathurst Street, MP11–322, Toronto, Ontario M5T 2S8, Canada; adavis{at}uhnresearch.ca

Abstract

Objectives People with spondyloarthritis (SpA), ankylosing spondylitis (AS) and psoriatic arthritis (PsA) have identified the importance of understanding how their disease and its treatment impacts on their social roles. This requires a reliable and valid standardised measure, and this study evaluates these measurement properties of the Social Role Participation Questionnaire (SRPQ).

Methods 109 participants (44 with AS, 65 with PsA) completed questionnaires on demographics, participation measures (SRPQ, Keele Assessment of Participation (KAP), Late Life Disability Instrument (LLDI)), disease severity (physician global) and activity (pain, fatigue, Bath Ankylosing Spondylitis Disease Activity Index), psychological measures (depressive symptoms (Hospital Anxiety and Depression Scale), Illness Intrusiveness)) and function (Health Assessment Questionnaire, Bath Ankylosing Spondylitis Functional Index). After testing scaling properties, test-retest reliability of the SRPQ was evaluated using intraclass correlation coefficients (ICC) and hypotheses of construct validity were evaluated using correlation coefficients.

Results Patients with AS had a mean age of 40 years and 65% were male, whereas patients with PsA had a mean age of 53 years and 63% were male. Although there were some differences between AS and PsA participants in their social role participation, scaling properties were good for both groups. ICCs were >0.90 for the satisfaction subscales of the SRPQ. For construct validity, SRPQ satisfaction subscales were moderately correlated with the KAP and LLDI (0.64–0.78), and less satisfaction was associated with higher disease severity and activity, more depressive symptoms, more illness intrusiveness and more disability (coefficients −0.67 to −0.88).

Conclusion Social role participation is an important concept for people with SpA, and the SRPQ is a reliable and valid measure for use with people with AS and PsA.

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Footnotes

  • Funding This work was supported by a National Research Initiative grant from The Arthritis Society awarded to the Spondyloarthritis Research Consortium of Canada.

  • Ethics approval This study was conducted with the approval of the research ethics board, University Health Network.

  • Provenance and peer review Not commissioned; externally peer reviewed.

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