Background Idiopathic Inflammatory Myopathies (IIM) are the group of rare diseases that carry a significant impact on patient's quality of life, influenced by the level of patient's satisfaction regarding medical services.
Objectives To assess the patient's satisfaction and quality of life.
Methods A cross-sectional study was performed from December 2015 to December 2016. There were included consecutive patients that fulfilled the Bohan and Peter1 criteria for IIM. The collected information was about demographic data, clinical and laboratory findings. The patient's satisfaction was assessed by self-administered Patient Satisfaction Questionnaire (PSQ III)2, which is a 50-item tool, covering 7 domains: general satisfaction, technical quality, interpersonal aspects, communication, financial aspects, time spent with doctor, access/availability/convenience. To estimate the quality of life we applied Short Form-8 questionnaire with 8 items for 8 domains and two components: mental and physical.
Results There were 32 patients enrolled in the study, including 23 females and 9 males, mean age 52.5±14.26 (range 25–78), the disease duration was 8.3±5.3 (range 0.5–12) years. The physical component was lower 37.49±8.49, than the mental component 44.96±6.24 points, we determined that the quality of patient's life was reduced. The PSQ III results were: general satisfaction 20±2.93, technical quality 36.8±5.93, interpersonal aspects 26.50±4.92, communication 19.7±3.25 and access/availability/convenience indicated 44.75±6.29 score. The time spent with doctor was 7±1.15, a border score. The average result in the financial aspects domain was 21.6±6.6, lower than the midpoint scoring (24). We identified correlation between the quality of life and the access/availability/convenience PSQ III domain. For the mental compound the correlation was moderate (r=0.5 p<0.005) and for physical domain it was weak (r=0.27 p<0.005), these results can be explained by the fact that patients got accustomed with the disease, but they are more interested in access to care and require increasement of the duration of medical consultation.
Conclusions Patients with idiopathic inflammatory myopathies have reduced quality of life; however they are satisfied of the medical attendance. The dissatisfaction was with the financial aspect, due to the long-term disease course and high indirect costs.
Bohan A, Peter JB. N Engl J Med 1975 Feb 13;292(7):344–7.
Ware J.Jr. et al. Defining and measuring patient satisfaction with medical care. Eval Program Plann. 1983; 6(3–4): 247–63.
Disclosure of Interest None declared