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THU0608 Visualization and Analysis Platform in The Swedish Rheumatology Register for Real-Time Data Feedback
  1. D. Di Giuseppe1,
  2. H. Eriksson2,
  3. A.-C. Elkan3,
  4. S. Ernestam3,4
  1. 1Department of Medicine Solna, Karolinska Institutet
  2. 2Carmona AB
  3. 3Medical Management Centre, Inst LIME
  4. 4Dept of Rheumatology, Inst of medicine, Solna, Karolinska Institutet, Stockholm, Sweden

Abstract

Background The Swedish Rheumatology Quality register (SRQ) started in 1995 and is one of the largest register collecting data on rheumatoid arthritis and other rheumatic diseases in the world. The aim of the register has always been to support health care along with collect data for research. The national coverage is 82.7% in rheumatoid arthritis. However, the extraction of useful real-time data in every day practice have been so far only limited.

Objectives To design and implement a tool connected to the SRQ that allows users to monitoring their local data and results of care in comparison to national data.

Methods We designed a Visualization and Analysis Platform (VAP) based on R language, using the web framework of Shiny (© RStudio, Inc.). The platform is based on predefined types of analyses such as flexible tabular presentations, cross-sectional and longitudinal comparisons. A user interface with reactive programming was implemented to control the appearance of interactive graphs and tables, and to explore the changes in outcome measures.

Results A web-based platform for live visualization of data was developed and linked to the SRQ, a register containing ca. 75,000 patients and 500,000 registered visits, as long as 60,000 prescriptions of biological treatments. The users is able to control the specifics of the data analysis using a flexible interface, and it can visualize the results in a graph as long as in a table, that can easily be download. An explanation of the graph is included, to support the user in the understanding of what is represented. The VAP tool has been used to visualize data on the so called Open Comparison diagrams, 5 quality indicators that have been discussed at national level and that have been used to evaluate performances of care across counties in Sweden. We also applied this tool to the analysis of use of biological treatments in Stockholm (Fig.1). The user is therefore able to visualize how many times a specific biological treatment has been prescribed in his unit and compare it to the national value, as long as select different periods of time of interest and different diagnosis.

Conclusions The VAP offers a flexible tool for visualization and analysis of real-time SRQ's data and it is aimed to satisfy the growing request of data by clinicians, patients, researchers, care providers and pharma companies. Moreover, the VAP tool by its nature allows the possibility of fast changes in this structure, following the changes in everyday rheumatology care in real-time.

Disclosure of Interest None declared

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