Background Fatigue is a common symptom in pediatric health conditions and is associated with poorer health related quality of life. (1). The Pediatric Quality of Life Inventory PedsQL™ Multidimensional Fatigue Scale (MFS) was designed by Varni and colleagues to measure fatigue in children. PedsQL-MFS is a widely used instrument to measure the disease-specific health-related quality of life summary measures in children and adolescents with arthritis (1-3).
Objectives The aim of this study was to describe the cultural adaptation, validity, and reliability of a Turkish version of the PedsQL-MFS in children and adolescents with arthritis.
Methods A total of 66 children (8-12 years) and adolescents (13-18 years) with arthritis and their parents were enrolled in the study. Children (n=32) and adolescents (n=34) were diagnosed with Juvenile Idiopathic Arthritis by a pediatric rheumatologist based on the ILAR diagnostic criteria. The 10 cm Visual Analog Scale (VAS)-fatigue was used to evaluate the validity of related domains in the the PedsQL-MFS. The participants rated how often a particular problem occurred in the past month, using a 5-point Likert Scale and for the young child self-report a 3-point scale. Each item is reverse-scored and rescaled to 0–100 scale, so that higher scores indicate fewer symptoms of fatigue. Both the PedsQL-MFS and 10 cm Visual Analog Scale (VAS)-fatigue were filled out by children and adolescents over 8 years of age and their parents.
Results The means of ages were 9.66±1.38 for children, 15.53±1.6 for adolescents. Internal reliability was good to excellent (Cronbach's alpha coefficients 0.86-0.91 for self-reporting and 0.83-0.91 for parent reporting). Parent–child concordance for all scores was moderate (0.49-0.57) (Table 1). The PedsQL-MFS and VAS-fatigue were highly correlated, with coefficients from -0.38 to -0.45, indicating concurrent validity.
Conclusions We demonstrated the reliability and validity of fatigue measurement using the Turkish version of the PedsQL-MFS in our sociocultural context. the PedsQL-MFS can be utilized as a tool for the evaluation of fatigue in children and adolescents with JIA aged 8–18 years.
Paulo L.T., Len C.A., Hilario M.O., Pedroso S.A., Vitalle M.S., Terreri M.T. Fatigue in children with juvenile idiopathic arthritis: reliability of the “Pediatric Quality of Life Inventory-Multidimensional Fatigue Scale”. Rheumatol Int. 2015 Jan;35(1):133-9.
Varni, J. W., Burwinkle, T. M., Limbers, C. A., & Szer, I. S. (2007). The PedsQL as a patient-reported outcome in children and adolescents with fibromyalgia: An analysis of OMERACT domains. Health and Quality of Life Outcomes, 5(9), 9.
Varni, J. W., Burwinkle, T. M., & Szer, I. S. (2004). The PedsQL Multidimensional Fatigue Scale in pediatric rheumatology: Reliability and validity. Journal of Rheumatology, 31(12), 2494–2500.
Disclosure of Interest None declared