Article Text

PDF
SP0108 Patient Education to Adults with Rheumatic Diseases through the Internet: A Valuable Example
  1. J. Ammerlaan
  2. on behalf of Lieske Scholtus, Harmieke van Os-Medendorp, Nienke de Boer-Nijhof, Bertha Maat, Aike A. Kruize, Hans Bijlsma, Rinie Geenen
  1. Department Rheumatology and Clinical Immunology, University Medical Center Utrecht, Utrecht, Netherlands

Abstract

Self-management is an important part in the treatment of chronic conditions, such as rheumatism. Interventions to promote self-management behavior are not always used. One of the reasons is the lack of active involvement of the end user in the development process. Also a theoretical underpinning of the intervention itself is often missed.

At the Department of Rheumatology and Clinical Rheumatology of the University Medical Center Utrecht, an online self-management training for adults with a rheumatic disease is being developed in close cooperation with the Dutch Arthritis Foundation. People with rheumatism, as patient partner, have a major role in development and research.

As theoretical framework, the Medical Research Council [1] is used. An important element in this framework is a needs assessment among the end-users. For this, a qualitative research was recently conducted by Facebook and Concept Mapping.

The next step is to build the training. After that, a feasibility and effectiveness study will follow.

Learning experiences During this session, the participant will:

  • – gain insights into the different steps we have taken;

  • – learn more about the fundament of the online training;

  • – gain awareness of the importance of involving the patient in development and research;

  • – get a sneak preview of the new online training.

Reference

  1. Craig P, Dieppe P, Macintyre S, Michie S, Nazareth N, Petticrew M. Developing and evaluating complex interventions: the new Medical Research Council guidance. BMJ 2008;377:979-983.

Disclosure of Interest None declared

DOI 10.1136/annrheumdis-2014-eular.6199

Statistics from Altmetric.com

Request permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.