Self-management is an important part in the treatment of chronic conditions, such as rheumatism. Interventions to promote self-management behavior are not always used. One of the reasons is the lack of active involvement of the end user in the development process. Also a theoretical underpinning of the intervention itself is often missed.
At the Department of Rheumatology and Clinical Rheumatology of the University Medical Center Utrecht, an online self-management training for adults with a rheumatic disease is being developed in close cooperation with the Dutch Arthritis Foundation. People with rheumatism, as patient partner, have a major role in development and research.
As theoretical framework, the Medical Research Council  is used. An important element in this framework is a needs assessment among the end-users. For this, a qualitative research was recently conducted by Facebook and Concept Mapping.
The next step is to build the training. After that, a feasibility and effectiveness study will follow.
Learning experiences During this session, the participant will:
– gain insights into the different steps we have taken;
– learn more about the fundament of the online training;
– gain awareness of the importance of involving the patient in development and research;
– get a sneak preview of the new online training.
Craig P, Dieppe P, Macintyre S, Michie S, Nazareth N, Petticrew M. Developing and evaluating complex interventions: the new Medical Research Council guidance. BMJ 2008;377:979-983.
Disclosure of Interest None declared