Article Text

SP0108 Patient Education to Adults with Rheumatic Diseases through the Internet: A Valuable Example
  1. J. Ammerlaan
  2. on behalf of Lieske Scholtus, Harmieke van Os-Medendorp, Nienke de Boer-Nijhof, Bertha Maat, Aike A. Kruize, Hans Bijlsma, Rinie Geenen
  1. Department Rheumatology and Clinical Immunology, University Medical Center Utrecht, Utrecht, Netherlands


Self-management is an important part in the treatment of chronic conditions, such as rheumatism. Interventions to promote self-management behavior are not always used. One of the reasons is the lack of active involvement of the end user in the development process. Also a theoretical underpinning of the intervention itself is often missed.

At the Department of Rheumatology and Clinical Rheumatology of the University Medical Center Utrecht, an online self-management training for adults with a rheumatic disease is being developed in close cooperation with the Dutch Arthritis Foundation. People with rheumatism, as patient partner, have a major role in development and research.

As theoretical framework, the Medical Research Council [1] is used. An important element in this framework is a needs assessment among the end-users. For this, a qualitative research was recently conducted by Facebook and Concept Mapping.

The next step is to build the training. After that, a feasibility and effectiveness study will follow.

Learning experiences During this session, the participant will:

  • – gain insights into the different steps we have taken;

  • – learn more about the fundament of the online training;

  • – gain awareness of the importance of involving the patient in development and research;

  • – get a sneak preview of the new online training.


  1. Craig P, Dieppe P, Macintyre S, Michie S, Nazareth N, Petticrew M. Developing and evaluating complex interventions: the new Medical Research Council guidance. BMJ 2008;377:979-983.

Disclosure of Interest None declared

DOI 10.1136/annrheumdis-2014-eular.6199

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