Background Research among Dutch arthritis patients has shown that quality improvement is needed in the field of “information about medication and treatment” and that patients want to be more involved in treatment decision-making. To educate patients about Disease Modifying Anti-rheumatic Drugs (DMARDs) and to increase patient involvement in decision making about medication, a Patient Decision Aid (PtDA) was developed. For the development a user's centred design procedure was used.
Objectives Aim of the current study was to evaluate the usage, patients'satisfaction about, and a the effects of the PtDA.
Methods A quasi-experimental questionnaire study among arthritis patients who were facing the decision to start (a different) drug, received a referreal to the PTDA (intervention group, n=123) or not (control group (n=158) A questionnaire was sent to all patients, 6 weeks after inclusion. The questionnaire included questions on, among others, patient's perceived role, knowledge, and satisfaction with the decision process. Patients from the intervention group were also questioned about the use of the PtDA, its perceived usefulness, its perceived ease of use, and its perceived effectiveness.
Results The PtDA was used by 57% of respondents in the intervention group. Younger (p=0.003) and higher educated (p=0.004) patients were more likely to have used the PtDA. Users were on average very positive about the PtDA: they rated the PtDA as useful, easy to use and easy to understand. Compared to the control group, patients in the intervention group perceived a more active role in decision-making (p=0.01) and perceived the final choice to be more consistent with their personal values (p=0.02). A significant increased knowledge was revealed among users of the PtDA (p=0.03). No effects were found on satisfaction, trust in physician, beliefs about medication, or adherence to medication.
Conclusions Our PtDA can be a valuable aid in improving patient participation in medical decision-making about anti-rheumatic drugs.
Disclosure of Interest None declared