The World Health Organisation has stated that patient involvement in their health care is not only desirable but a social, economic and technical necessity
Patients want to be involved in the decision making process, especially when alternative treatments exist. Patients have ultimate responsibility for many decisions taken in connection with their health. Specifically, they decide when to seek medical advice, whether to accept that advice and ultimately whether to comply with prescribed medicines or whether to present a case for an alternative product.
Patients associate their satisfaction with treatment with the quality of communication with their HCP
Good communication is considered to be a prerequisite for a treatment to work
Patients wanted to be accepted as experts on their own bodies, and expected all clinicians to be experts on RA. This made it possible for patients to “take charge” of their life situation
Participant in focus group interviews identified their needs to live with a rheumatic disease. These could be classed into the following groups:
They also expressed what they expected from healthcare, resulting in a fourth theme – well organised care.
Patients rank physical well-being, functional well-being and psychological well-being as the most important outcomes.
They want a quality of existence comparable to a status before start of their disease
Disclosure of Interest None declared