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THU0583-HPR Living with Pain in Ankylosing Spondylitis: A Qualitative CASE Study
  1. G. Bagcivan1,
  2. F.I. Cinar1,
  3. M. Cinar2,
  4. F. Oflaz3,
  5. S. Uzun4,
  6. S. Pay2
  1. 1School of Nursing
  2. 2School of Medicine, Division of Rheumatology
  3. 3Retired employee, Gulhane Military Medical Academy, Ankara
  4. 4Health Science Faculty Department of Nursing and Health Services, Yeditepe University, Istanbul, Turkey

Abstract

Background Pain, stiffness, fatigue and sleep problems are the most important symptoms of ankylosing spondylitis (AS) patients. Among these symptoms, inflammatory back pain is a major symptom reported by all AS patients. Although there are various quantitative studies reporting that pain is one of the most serious and prevalent problems during the course of AS, there are no detailed qualitative studies on how pain affects the AS patients physically, socially, emotionally, and economically.

Objectives The aim of this study was to determine the pain experiences of patients with AS and the effect of pain on their lives by the method of direct interview.

Methods This qualitative case study included 23 patients with AS. The data was collected by using both a demographic data form and a semi-structured interview form. Each patient was interviewed face-to-face. The data obtained was evaluated using a content analysis method.

Results The data was analysed in 6 categories and 4 subcategories. The categories included the following: (1) pain as described by the patient, (2) the effect of pain on daily routine activities, (3) the effect of pain on social life, (4) the effect of pain on employment, (5) the effect of pain on family life, and (6) the emotional effects of pain. During periods of pain, patients indicated that they experienced difficulty in carrying out their daily routine activities and in meeting their personal needs. Pain also prevented them from fulfilling their responsibilities in the family, inhibited their social relations and caused trouble at their workplace. Due to the negative effects of pain in their lives, the patients felt helplessness, fear, stress, sadness, and unhappiness.

Conclusions Besides being asked about the quantity of pain, patients with AS should also be questioned on how pain affects their lives. Such an approach would guide the health care workers in planning and applying health care specific for each individual patient.

References

  1. Chorus AM, Miedema HS, Boonen A, Van Der Linden S: Quality of life and work in patients with rheumatoid arthritis and ankylosing spondylitis of working age. Ann Rheum Dis 2003; 62:1178-84.

  2. Hakkou J, Rostom S, Mengat M, Aissaoui N, Bahiri R, Hajjaj-Hassouni N: Sleep disturbance in Moroccan patients with ankylosing spondylitis: prevalence and relationships with disease-specific variables, psychological status and quality of life. Rheumatol Int 2013; 33(2):285-90

  3. Özgül A, Peker F, Taskaynatan MA, Tan AK, Dincer K, Kalyon TA. Effect of ankylosing spondylitis on health-related quality of life and different aspects of social life in young patients. Clin Rheumatol 2006; 25: 168-174

Disclosure of Interest : None declared

DOI 10.1136/annrheumdis-2014-eular.2407

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