Background Patients with Rheumatoid Arthritis (RA) face several problems due to their disease, such as pain, fatigue, anxiety, which have consequences in their daily life. Self-management programs can support patients to manage these consequences. To build a patient focused self-management program, insight in support needs from the patient's perspective is important. Currently, insight in these support needs is lacking.
Objectives To perform a scoping review on the support needs for self-management as formulated by RA patients
Methods We conducted a scoping review according to the steps of Levac et al (2010) with the following research question: what are the support needs for self-management from a patient perspective? We searched Pubmed, CINAHL and PsychInfo in May 2013 for studies from last ten years. We searched Pubmed, CINAHL and PsychInfo in May 2013 for studies from the last ten years. Of the 642 studies retrieved, 20 were considered relevant. We also consulted patients from our development group to reflect on the results of our literature review.
Results Based on the preliminary outcomes, we made a distinction between (1) information needs (e.g information about medication and performing exercises) and (2) support from peers, professionals and colleagues (e.g. support at work through colleagues or support of peers because of the mutual recognition). We divided these support needs in the areas of consequences of the disease, namely: (1) physical consequences, (2) psychological consequences, (3) social consequences, (4) daily life consequences and (5) work consequences.
Conclusions This study offers an overview of support needs for self-management from RA patients' perspective, which can help to build a patient focused self-management program.
Disclosure of Interest : None declared
Statistics from Altmetric.com
If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.