Background Compliance problems occur in most chronic diseases, especially in children. Facilitate adherence is an important issue. A positive perception of the parents for the treatment can help to improve the observance of their children, and to improve the control of the disease.
Objectives This study describes the views of parents of patients with juvenile idiopathic arthritis (JIA) on different conventional treatments received by their children.
Methods Forty seven patients with juvenile idiopathic arthritis (JIA) were included in a cross-sectional study. The diagnosis of JIA was made according to the criteria of the International League of Association of Rheumatology (ILAR). Information on disease activity, quality of life, sex, age, age at diagnosis, and duration of medication use were collected by use of a standardized questionnaire. Parents of children with JIA were surveyed. Questionnaires asked about patients’ use of different therapies in the past 30 days, their perceived helpfulness (0 = not helpful; 3 = very helpful), perceived side effects (0 = none; 3 = severe), and whether each therapy would be recommended to other patients with JIA (Yes, No, Not sure).
Results Forty seven children with JIA were included (28 male, 19 female); the median of age of the patients was [5-16] years. AINS were used by 29 (53.7%) by patients, Corticosteroids in 25.9% of cases and DMARDs (Disease-modifying antirheumatic drugs) in 18.5%.
Biologic medications were the most appreciated (50% of patients judge that it very efficient), monitoring of steroid treatment in 36.4% of cases, the non steroidal anti-inflammatory drugs (NSAIDs) in 34.5%, and DMARDs in 22.2%.
For the side effects, the biologic medications weremore tolerated, tracking des DMARD’s in 66.7%, NSAIDs in 63.6% and corticosteroids in 45.5% of cases.
Paradoxically, Corticosteroids and NSAIDs were more recommended to others families in 63.6% of cases, tracking des DMARDs.
Conclusions This study suggests that parents of children with JIA viewed some symptomatic medications as being more helpful than some DMARD’s.
Disclosure of Interest None Declared
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