Background In order to minimise differences in rheumatology nursing care across countries and regions, recommendations for the role of the nurse have been developed (1). However, patients should be directional in defining the content of good quality care. Therefore, their expectations and needs were explored in focus groups. 4 main themes were categorised: education, self-management support, emotional support and well-organised care.
Objectives The objective of the present study was to explore 1) the importance of the themes among a larger group of patients 2) patient satisfaction with the care that is provided and 3) patients’ preferences for methods of care delivery.
Methods Dutch patients were invited to participate in a web-based survey. The survey presented topics for each theme. Patients had to select the most appropriate answer. For each topic, patients had to select 1 out of 5 categories for importance (not at all/somewhat no/somewhat yes/very/do not know). Regarding education, patients also had to give their satisfaction, by whom they would like to receive care and by what method.
Results In total 475 patients, with systemic inflammatory diseases such as RA (76%), and other disorders such as OA (24%), filled in the questionnaires. Mean age was 56 years, mean disease duration was 13 years, and 72% were female. The topics of most importance are presented in the table.
Conclusions The survey yielded valuable information about the importance of topics for education, self-management support, emotional support and care organisation but also about patients’ opinions about care delivery. The results can support monitoring of the quality of care from a patient’s perspective.
van Eijk-Hustings Y, van Tubergen A et al. EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis. Ann Rheum Dis. 2012;71 (13-19).
Acknowledgements We would like to thank our patient research partners for their valuable contribution to this study.
Disclosure of Interest None Declared