Background Increasingly, patients are encouraged to participate in treatment decisions. Shared Decision Making (SDM) is assumed to have various potential advantages, including improved satisfaction, less decisional conflict and better treatment adherence. In our previous study we found that many patients with Rheumatoid Arthritis (RA) are less involved in decisions about medication than they prefer. Aim of this project is to develop and evaluate a Patient Decision Aid (PtDA), to improve patient involvement in decisions about disease modifying anti-rheumatic drugs (DMARDs).
Methods A users’ centered design-approach was used. First, patients (n=30) were interviewed regarding their opinions about a PtDA, and regarding their beliefs, concerns about and experiences with different DMARDs. Throughout the process, rheumatologists and nurse practitioners were asked about their opinions regarding the content and implementation of the PtDA. Based upon literature and the results of these studies, a concept version of the PtDA was developed, which was then adapted upon the results of a usability study among 10 patients.
Findings The developmental process resulted in an online PtDA, consisting of various parts: 1) general information about shared decision making, RA, and types of medication, 2) an application to compare medication options suggested by the rheumatologist; 3) a value clarification exercise to get insight into personal concerns, doubts and preferences 4) a printed summary that patients can discuss with their rheumatologist.
Discussion Currently, the PtDA is being evaluated in a quasi-experimental study. During the presentation we will elaborate on the developmental process, and the PtDA will be demonstrated.
Disclosure of Interest I. Nota Grant/research support from: Dutch Arthritis Association
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