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PARE0002 Patient osteoporosis information leaflet “the bone thief, how to stop him”
  1. J.-N. Dachicourt1,9,
  2. C. Bonnet2,
  3. C.L. Benhamou3,10,
  4. R. Ghozlan4,
  5. F. Alliot Launois5,9,
  6. C. Cardon4,9,
  7. L. Carton4,9,
  8. T. Thomas6,10,
  9. P. Tauveron7,9,
  10. L. Grange8,9
  1. 1Association Française de Lutte Anti-Rhumatismale, Paris
  2. 2CHU Dupuytren, Limoges
  3. 3CHR - Hopital d’Orléans la Source, Orleans
  4. 4Association Aflar
  5. 5CHU Hôpital Pitié Salpétrière, Paris
  6. 6CHU Hôpital Nord - Saint Etienne, Saint Etienne
  7. 7Association Française de Lutte Anti-Rhumatismale, Tours
  8. 8CHU - Hôpital Sud A. Michallon, Echirolles, France
  9. 9On behalf of Association Française de Lutte Anti-Rhumatismale
  10. 10On behalf of Groupe de Recherche et d’Information sur les Ostéoporoses

Abstract

Background Osteoporosis is a real matter or public health affecting more than 1 woman out of 3 and 1 man out of 12 (1). Over 50 years old, at least 1 woman out of 3 and 1 man out of 8 will suffer from an osteoporotic-caused fracture (2). Osteoporosis is a heavy-consequence pathology as every thighbone-upper-end-fracture leads to an average 21 days of hospitalization, 21% of patients die within three months, with a twice higher mortality rate amongst men. Silent before fracture happens, this pathology is commonly under-treated and under-diagnosed.

Objectives The public has to realize how serious it is and large scale screening tests must take place to improve care. Aflar, created in 1928 and state-approved for its public utility, has a mission of improval of care for all rheumatic and musculo-skeletal disorders, among them osteoporosis. It is the only french association representing osteoporosis patients. It aims at supporting public information about the disease. Aflar has decided to create a leaflet in partnership with GRIO in order to help french population take conscience of osteoporosis.

Methods To conceive this new public information tool on osteoporosis, a physical brainstorming meeting took place, as well as two phone conferences about redaction. Patients members of AFLAR were included, as well as AFLAR and GRIO recognized experts. They all participated equally to the conception and the redaction. The goal was to determine the key messages to improve care of osteoporosis and therefore its screening and its treatment.

Results We offer a triptycal A4 leaflet answering major questions in an attractive way: I’m young, am I concerned ? hy is it a problem if it doesn’t cause pain ? How do I know about my bones health ? What is osteoporosis ? What can I do to prevent it ? At the end, an validation quizz helps take conscience of one’s own knowledge.

Conclusions This document, innovative in its conception including patients, is to become a leading information tool on osteoporosis for the french population. Created for the public, it’s been elaborated with AFLAR patients and GRIO experts. It is the first in a new series of tools respecting modern conception and fabrication standards, placing the patient at the heart of the editorial process.

  1. Dargent-Molina P. Epidémiologie de l’ostéoporose. Médecine thérapeutique 3 (1997):5-12.

  2. Dargent-Molina P. Epidémiologie et facteurs de risque de l’ostéoporose. La Revue de Médecine Interne 25 (2004) S517-S525.

Disclosure of Interest None Declared

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