Background People living with Rheumatoid Arthritis [RA] needs price discounted drugs & proper nursing care. Appropriate public health program incorporating NGO’s in healthcare set-up are necessary. Specially trained nursing personal are rarity in rural/tribal areas of India. Hence RA patients don’t have access to palliative & rehabilitation services. Hence our NGO made this public health policy recommendation to Govt authorities to evolve trained nurses in isolated communities of resource-poor-settings
Objectives Cost/availability of RA-DMARA drugs is debatable. Over 82% patients in rural Indiacannot afford allopathic-therapies, so life with RA-is granted as end-game. Since September 2003 various community initiatives are implemented to reduce therapy cost by our NGO. We need to facilitate development of sound & sustainable nursing care programs in marginalized communities. Various national & international programs offer drugs, technical assistance. Establish Uniform public health policy to develop of sound/sustainable RA-care-programs.
Methods Our presentation being a Policy issue we shall present our NGO’s feedback responses by charts distribution at EULAR-Berlin meeting. This project is advocacy campaign in India for Rheumatoid Arthritis [RA] patients community
Results Drug therapy is out of reach for >90% patients. Rehabilitation/palliative care plans are non-existent in rural/tribal India. Concrete proposals done only by 2 NGOs, 5 governments & 1private entities. RA-nursing-care-services implemented together with low-cost-drugs show more positive outcome.
Conclusions Lessons learned: Community participation of NGO in administration of nursing-care/therapeutic-RX is very effective in terms of cost-management, better-compliance. Community mass intervention & low-cost drug-supply-projects has proven useful in rural communities of resource poor-nations EULAR-conference-participants can collaborate with NGO-activist to address this issue. Uniform public health policy needed to implement & expand cost-cutting measures to include a broader range of RA-care services. Nurses with scientific knowledge & expertise are available resource for influencing RA care. They act as channel to implement psycho-support programs. NGOs should utilize this approach to reduce cost factor in cancer control & better nursing care in rural/tribal areas where qualified Rheumatologists are a rarity.
Recommendations Promoting dialogue between health services & nurses accelerates NGO-care efforts. NGO nurses participation increases more compliance. Nurses have direct-communication with patients. Hence nurses must be involved in Public-health-policy issues. This would reduce difficulties faced by patients from resource poor southern countries. It is essential that EULAR form common guideline manual on this issue affecting developing countries at EULAR-Berlin congress.
Developing nations have little motivation, resources, & technologies for improving patient care skills. Governmental & NGO’s has to carry out RA-care training programs with available resources. Or NGO nurses trained in counseling provide better supportive care with reduced cost. We intend to form an Umbrella group of NGO-nurses to workout more planned approach to this issue at EULAR-2012 conference venue
Disclosure of Interest None Declared