Objectives To describe in children with haemophilic arthropathy, their perceptions about their scholarship situation.
Methods Twenty five children (all boys, age of 11.6±3.7 years, mean disease duration of 10.8±3.4years, haemophilia severe (28%) and moderate (72%)) suffering from Haemophilia with hemophilic arthropathy (affecting at least one joint) were consecutively recruited in this study. Children were asked about their scholarship and their perceptions about their entourage at school.
Results All patients were at school. Scholarship was interrupted in one child because of the hemophilic arthropathy. 92% of parents have informed the class teacher about their child disease. Schoolmates were aware of risk of bleeding in hemophilic patients in 76% of cases. Children expressed many difficulties in their daily living at school. Relation with their schoolmates was negatively affected: verbal violence and discrimination reaction from colleagues and integration difficulties at classroom in respectively 52%, 12% and 32% of cases.
Difficulties at walking to school, because of the lower limb arthropathy, were reported by 48% of patients. Three patients were also very embarrassed by difficulties at writing, due the involvement of wrist and or elbow. Absenteeism was reported in all patients and was exceeding one month per year in 56% of cases. Absenteeism was mostly caused by bleeding into joints. Only 3 children have received courses during their hospitalizations.
Conclusions This study suggests a high negative impact of hemophilic arthropathy on children scholarship. Even if with such chronic disabling diseases, children must be benefit of their legitimate right of scholarship. This negliged aspect of haemophilia consequences should be more clarified in our country by a larger study. This can be a first step to make a national program to assist hemophilic children throughout their scholarship.
Disclosure of Interest None Declared