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SP0116 Improving the prevention of co-morbidity of lupus patients – a project of the german lupus patient organisation
  1. B. Winkler-Rohlfing
  1. Lupus Erythematodes Selbsthilfegemeinschaft e.V., Wuppertal, Germany


The medical treatment of people with systemic lupus erythematosus has improved considerably during the last decades. Persons with the condition die less and less often because of the condition and death following a severe infection due to immunosuppressive medication has decreased in frequency. However, the number of patients dying because of arteriosclerosis has increased. As lupus patients have a higher risk to develop arteriosclerosis due to their condition and the necessary therapy, it is very important to influence as many risk factors as possible. In order to raise awareness with patients and doctors about the risk factors and possibilities of prevention, the lupus prevention passport has been developed. Using a traffic light code, the risk factors smoking, excess weight, high blood pressure, high glucose level and lack of exercise can be identified and evaluated. The passport contains an additional emergency section and a chart which allows the patient to carry with them their recent data and information about their medication. The use of the passport has been evaluated. The Lupus Erythematosus Self-help Organisation supports the use of the passport through a special internet platform Further training was supposed to increase the use of the passport, which has partly succeeded.

Disclosure of Interest None Declared

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