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SP0052 Taking action against stigmatization
  1. A.T. Kennedy
  1. Fesca, Dublin, Ireland

Abstract

“Taking Action Against Stigmatization” considers the interventions being currently researched and offered to combat both the depression and self-seclusion created by a disfiguring and disabling chronic disease, and the bias and exclusion by society that is often unconscious or based on incorrect facts. Using scleroderma (SSc) as an example, this session will investigate the growing portfolio of psychosocial programs that can significantly improve Quality Of Life (QOL) and return those with the condition to a position in which to participate as happy and useful members of society. The lecture will discuss surveys that have investigated the effects of SSc such as pain, fatigue, body-image, and emotional distress, which have a major influence on daily activities and QOL, and other symptoms such as gastrointestinal issues and sexual difficulties, which are among the worst prevalent and disruptive physical problems socially, before turning to some of the programs developed in order to meet these needs. Self-stigmatization causes significant disruptions in social life, a burden considered by many as the worst consequence of their disease. Depression, low self-esteem, concerns with physical appearance, and uncertainty about future outcomes are symptoms of chronic disease that need treatment as much as kidney, lung, and gut involvement.

Disclosure of Interest None Declared

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