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EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis
  1. Yvonne van Eijk-Hustings1,
  2. Astrid van Tubergen2,
  3. Carina Boström3,
  4. Elena Braychenko4,
  5. Beate Buss5,
  6. José Felix6,
  7. Jill Firth7,
  8. Alison Hammond8,
  9. Benny Harston9,
  10. Cristina Hernandez10,
  11. Masa Huzjak11,
  12. Jana Korandová12,
  13. Marja Leena Kukkurainen13,
  14. Robert Landewé14,
  15. Maryse Mezieres4,
  16. Marijana Milincovic15,
  17. Antonella Moretti15,
  18. Susan Oliver16,
  19. Jette Primdahl17,18,
  20. Marieke Scholte-Voshaar19,
  21. Jenny de la Torre-Aboki20,
  22. Jennifer Waite-Jones7,
  23. Rene Westhovens21,
  24. Heidi Andersen Zangi22,
  25. Turid Heiberg23,24,
  26. Jackie Hill25
  1. 1Department of Integrated Care, Maastricht University Medical Centre, Maastricht, The Netherlands
  2. 2Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center, Maastricht, The Netherlands
  3. 3Department of Neurobiology, Care Sciences and Society, Division of Physiotherapy, Karolinska Institutet, Stockholm, Sweden
  4. 4Service de Recherche Clinique en Rhumatologie B du Professeur M Dougados, Hôpital Cochin, Paris, France
  5. 5Rheumatology, Charité Universitätsmedizin, Berlin, Germany
  6. 6Rheumatology Unit, Main Military Hospital, Lisbon, Portugal
  7. 7Pennine MSK Partnership Ltd Integrated Care Centre, Oldham, UK
  8. 8Centre for Health, Sport and Rehabilitation Research, University of Salford, Salford, UK
  9. 9West Lodge, Blofield, UK
  10. 10Spanish League of Arthritis Patient Associations, Madrid, Spain
  11. 11Department of Rheumatology, University Medical Centre Ljubljana, Ljubljana, Slovenia
  12. 12Institute of Rheumatology, Prague, Czech Republic
  13. 13Finnish Society of Rheumatology Nurses (FSRN), Heinola, Finland
  14. 14Department of Internal Medicine, Division of Rheumatology, Academic Medical Centre/University of Amsterdam and Atrium Medical Centre, Heerlen, The Netherlands
  15. 15Clinica Reumatologica, Università Politecnica delle Marche, Ospedale C Urbani, Jesi Ancona, Italy
  16. 16Minerva Health Centre, Preston, UK/Barnstaple, UK
  17. 17King Christian X’s Hospital for Rheumatic Diseases, Graasten, Denmark
  18. 18Institute of Regional Health Services Research, University of Southern Denmark, Odense, Denmark
  19. 19Dutch League of Arthritis Patient Associations, Amersfoort, The Netherlands
  20. 20Department of Rheumatology, Alicante General and University Hospital, Alicante, Spain
  21. 21Department of Rheumatology, University Hospital Leuven, Leuven, Belgium
  22. 22National Resource Center for Rehabilitation in Rheumatology (NRRK), Diakonhjemmet Hospital, Oslo, Norway
  23. 23Department for Research and Education, Oslo University Hospital, Oslo, Norway
  24. 24Department of Rheumatology, Lovisenberg Diaconal College, Diakonhjemmet Hospital, Oslo, Norway
  25. 25Academic and Clinical Unit for Musculoskeletal Nursing (ACUMeN), Academic Section of Musculoskeletal Disease, Leeds Institute of Molecular Medicine, Leeds, UK
  1. Correspondence to Yvonne van Eijk-Hustings, Department of Integrated Care, Maastricht University Medical Centre, Postbox 5800, 6202 AZ Maastricht, The Netherlands; yvonne.eijk.hustings{at}mumc.nl

Abstract

Objectives The authors aim to develop European League Against Rheumatism recommendations for the role of the nurse in the management of patients with chronic inflammatory arthritis, to identify a research agenda and to determine an educational agenda.

Methods A task force made up of a multidisciplinary expert panel including nurses, rheumatologists, occupational therapist, physiotherapist, psychologist, epidemiologist and patient representatives, representing 14 European countries, carried out the development of the recommendations, following the European League Against Rheumatism standardised operating procedures.

The task force met twice. In the first meeting, the aims of the task force were defined, and eight research questions were developed. This was followed by a comprehensive, systematic literature search. In the second meeting, the results from the literature review were presented to the task force that subsequently formulated the recommendations, research agenda and educational agenda.

Results In total, 10 recommendations were formulated. Seven recommendations covered the contribution of nurses to care and management: education, satisfaction with care, access to care, disease management, psychosocial support, self-management and efficiency of care. Three recommendations focused on professional support for nurses: availability of guidelines or protocols, access to education and encouragement to undertake extended roles. The strength of the recommendations varied from A to C, dependent on the category of evidence (1A–3), and a high level of agreement was achieved. Additionally, the task force agreed upon 10 topics for future research and an educational agenda.

Conclusion 10 recommendations for the role of the nurse in the management of chronic inflammatory arthritis were developed using a combination of evidence-based and expert consensus approach.

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Footnotes

  • YVEH and AVT share first authorship for this study and TH and JH share last authorship for this study.

  • Funding This project was financially supported by the European League Against Rheumatism (EULAR).

  • Competing interests None.

  • Provenance and peer review Not commissioned; externally peer reviewed.

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