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The Paediatric Standing Committee has continued in its valuable cooperation with the related European organisations in paediatric rheumatology—that is, Paediatric Rheumatology European Society (PRES) and Paediatric Rheumatology International Trials Organisation (PRINTO). Several of the standing committee’s country representatives are also members of, and active participants in, activities of those organisations. Some specific activities are highlighted below.
The validation of "core set of outcome" for juvenile dermatomyositis (JDM) and juvenile SLE is in progress. Many patients from several countries have been entered into the database. A consensus conference on "Definition of improvement for JDM and JSLE" was held in Genova, Italy, September, 2003.
Working groups for scleroderma, JDM, CINCA, recurrent fevers, and vasculitis are making progress.
The standing committee and members of PRES participated as lecturers in paediatric rheumatology in the EULAR course in rheumatology in Budapest, September 2002.
PRINTO has received a third EU grant to create a web site with information on paediatric rheumatic disease directed to families.
In addition PRINTO has received a fourth EU grant to arrange 24 scholarships for Latin American recipients to come to Europe and four scholarships for European recipients to go to Latin America.
PRES is continuing to work with the authorisation of centres for continuing education in paediatric rheumatology.
EULAR has decided to support a European course in collaboration with PRES in paediatric rheumatology to be held in an Eastern European country in 2004.
In the evaluation of the joint meeting EULAR/PRES in Stockholm, June 2002, most of the standing committee members were very positive and wished to continue with joint meetings every third or fourth year. One problem was the congress fee which was high for paediatric rheumatologists, who are seldom sponsored. More bursaries, especially for young colleagues, are needed for the next joint congress. The recent annual PRES meeting was held in Stresa, Italy, September 2003.
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