EULAR NEWS

Department of Rheumatology, Felix Platter Spital, CH-4012, Basel, Switzerland

Correspondence to:
Correspondence to:
Professor A Tyndall
alan.tyndall@fps-basel.ch

Under the auspices of the EULAR Standing Committee for International clinical Studies Including therapeutic Trials (ESCISIT), the EULAR Scleroderma Trials And Research (EUSTAR) group was officially founded in June 2004 during the Berlin EULAR congress. This was the culmination of 18 months’ intense activity by many people across Europe, and a summary is available on the website (http://www.EUSTAR.org). The logo (fig 1) features a star from a painting by Paul Klee, who himself succumbed to this dreadful disease.

View larger version (113K): [in this window] [in a new window]   Figure 1  EUSTAR logo.

An integral part of the EUSTAR mission was the development of a Minimal Essential Data Set, called MEDS. This consists of a simple two page form containing domains relating to basic demographics, disease subsets, autoantibodies, disease activity, disease duration, and organ involvement, including modified Rodnan skin score, body weight, and carbon monoxide transfer factor (TLCO, % of predicted). Also included are yearly follow ups and . . . [Full text of this article]

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