© 2003 by BMJ Publishing Group Ltd & European League Against Rheumatism
EULAR REPORT
EULAR Standing Committee on Paediatric Rheumatology: 2003
Chairman, Standing Committee on Paediatric Rheumatology; boel.andersson-gare@ltjkpg.se
| The first 150 words of the full text of this article appear below. |
The Paediatric Standing Committee has continued in its valuable cooperation with the related European organisations in paediatric rheumatologythat is, Paediatric Rheumatology European Society (PRES) and Paediatric Rheumatology International Trials Organisation (PRINTO). Several of the standing committees country representatives are also members of, and active participants in, activities of those organisations. Some specific activities are highlighted below.
The validation of "core set of outcome" for juvenile dermatomyositis (JDM) and juvenile SLE is in progress. Many patients from several countries have been entered into the database. A consensus conference on "Definition of improvement for JDM and JSLE" was held in Genova, Italy, September, 2003.
Working groups for scleroderma, JDM, CINCA, recurrent fevers, and vasculitis are making progress.
- The standing committee and members of PRES participated as lecturers in paediatric rheumatology in the EULAR course in rheumatology in Budapest, September 2002.
- PRINTO has received a third EU grant to create a web site
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